Behavioural Research and Evaluation Unit, Cancer Council SA, Eastwood, Australia.
Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Bedford Park, Australia.
Asia Pac J Clin Oncol. 2023 Oct;19(5):e305-e313. doi: 10.1111/ajco.13914. Epub 2023 Jan 19.
Response to the substantial and long-term impacts that a cancer diagnosis and treatment has on the growing population of cancer survivors, requires priority-driven, impactful research. This study aimed to map Australian cancer survivorship research activities to identify gaps and opportunities for improvement and compare activities against identified survivorship research priorities.
An online survey was completed by Australian researchers regarding their cancer survivorship research, and the barriers they identified to conducting such research. Current research activity was compared to recently established Australian survivorship research priorities.
Overall, 178 participants completed the online survey. The majority of the research undertaken utilized survey or qualitative designs and focused on breast cancer, adult populations, and those in early survivorship (<5 years post-treatment). Barriers to conducting survivorship research included funding, collaboration and networking, mentoring, and time constraints. There was moderate alignment with existing research priorities. Investigating models of care and health service delivery were the most frequently researched priorities. Research priorities that were less commonly investigated included patient navigation, patient-reported outcomes, multimorbidity, fear of cancer recurrence, and economic issues.
This study provides the first snapshot of Australian survivorship research activity. Comparison to established priorities demonstrates health services research is receiving attention and highlights areas for potential pursuits, such as rare cancers or multimorbidity. Findings indicate the need for improved funding and infrastructure to support researchers in advancing the survivorship research agenda.
应对癌症诊断和治疗对不断增长的癌症幸存者群体产生的重大和长期影响,需要优先驱动、有影响力的研究。本研究旨在绘制澳大利亚癌症生存研究活动图,以确定差距和改进机会,并将活动与已确定的生存研究重点进行比较。
澳大利亚研究人员在线完成了一项关于癌症生存研究及其开展此类研究所面临的障碍的调查。将当前的研究活动与最近确定的澳大利亚生存研究重点进行了比较。
共有 178 名参与者完成了在线调查。开展的大多数研究采用调查或定性设计,重点关注乳腺癌、成年人群体和处于早期生存(<5 年治疗后)的人群。开展生存研究的障碍包括资金、合作和网络、指导以及时间限制。与现有研究重点有一定程度的一致性。调查护理模式和卫生服务提供是研究最多的优先事项。研究较少的优先事项包括患者导航、患者报告的结果、多种疾病、对癌症复发的恐惧以及经济问题。
本研究提供了澳大利亚生存研究活动的第一个快照。与既定重点的比较表明,卫生服务研究受到关注,并强调了潜在追求的领域,例如罕见癌症或多种疾病。研究结果表明,需要改善资金和基础设施,以支持研究人员推进生存研究议程。