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儿童医院中癌症患儿面临的最好与最坏的事情:一项基于访谈的西班牙医院定性研究。

The Best and the Worst Things About the Hospital for Children with Cancer: A Qualitative, Interview-Based Study in a Spanish Hospital.

作者信息

Ullán Ana M, Herreros Pilar, Belver Manuel H, Jerez Carmen

机构信息

Department of Social Psychology, University of Salamanca, Salamanca, Spain.

Patient Care Service, Niño Jesús Hospital, Madrid, Spain.

出版信息

J Patient Exp. 2023 Jan 17;10:23743735221149499. doi: 10.1177/23743735221149499. eCollection 2023.

Abstract

The comprehensive psychosocial assessment of children with cancer requires listening to them and understanding their point of view. The objective of this work was to know what the participating children with cancer thought about the hospital, which they considered to be the best and worst aspects of their experience. We conducted a qualitative study using semi-structured interviews with 27 children with cancer. The interviewer asked the participating children what they considered to be the best thing about the hospital and what they considered to be the worst. These conversations with them were recorded and transcribed, and a thematic analysis of these transcripts was conducted. Among the aspects of the hospital that the children rated most highly was the treatment they received from the health care staff. Among what the children considered the worst aspect of their experience was pain, particularly pain caused by medical procedures such as injections. The obtained results lead us to conclude that children have a complex view of the hospital and are capable of a detailed analysis that must be taken into account.

摘要

对患癌儿童进行全面的社会心理评估需要倾听他们的声音并理解他们的观点。这项工作的目的是了解参与研究的患癌儿童对医院的看法,以及他们认为自身经历中最好和最糟糕的方面。我们开展了一项定性研究,对27名患癌儿童进行了半结构化访谈。访谈者询问参与研究的儿童他们认为医院最好的方面以及最糟糕的方面是什么。与他们的这些对话进行了录音和转录,并对这些转录内容进行了主题分析。在孩子们评价最高的医院方面中,是他们从医护人员那里得到的治疗。在孩子们认为自身经历最糟糕的方面中,是疼痛,尤其是注射等医疗程序造成的疼痛。所获得的结果使我们得出结论,孩子们对医院有着复杂的看法,并且能够进行详细的分析,这一点必须予以考虑。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9c34/9850125/201aa40e0536/10.1177_23743735221149499-fig1.jpg

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