Clinical and Translational Science Center, UNM Health Sciences Center, University of New Mexico, Albuquerque, NM, United States.
Department of Family and Community Medicine, UNM Health Sciences Center, University of New Mexico, Albuquerque, NM, United States.
Front Public Health. 2023 Jan 11;10:959504. doi: 10.3389/fpubh.2022.959504. eCollection 2022.
Representation of diverse populations in health research enhances our ability to understand the factors that impact health, generalize results, implement findings, and promote social justice. The primary objective of the study was to understand the unique perspectives of frontline community health workers (CHWs) to identify actionable barriers and facilitators that may impact representation of diverse groups in health research. Focus groups with CHWs were conducted followed by thematic analysis. Results revealed five main themes: barriers/risks to research participation, facilitation of research, CHW roles, recommendations, and transparency. A novel finding was that some CHWs see themselves as both facilitators and gatekeepers. As facilitators, CHWs ensure their patient populations receive resources and benefit from being involved in research; as gatekeepers CHWs feel that they protect patient populations from experiencing further trauma, especially when engaging in research. Recognizing that in many communities there is a high reliance and trust with CHWs, can promote genuine and informed participation at all stages of research.
在健康研究中体现不同人群的代表性,可以增强我们理解影响健康的因素、推广研究结果、实施研究发现和促进社会公正的能力。本研究的主要目的是了解一线社区卫生工作者(CHW)的独特观点,以确定可能影响健康研究中不同群体代表性的可采取的障碍和促进因素。对 CHW 进行了焦点小组讨论,然后进行了主题分析。结果揭示了五个主要主题:参与研究的障碍/风险、促进研究、CHW 角色、建议和透明度。一个新的发现是,一些 CHW 认为自己既是促进者,也是把关者。作为促进者,CHW 确保他们的患者群体获得资源并受益于参与研究;作为把关者,CHW 认为他们保护患者群体免受进一步的创伤,特别是在参与研究时。认识到在许多社区中,CHW 受到高度依赖和信任,可以促进在研究的所有阶段真正和知情的参与。