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加的夫痤疮残疾指数的验证以及教育材料在罗马尼亚文化适应背景下的影响。

Validation of the Cardiff acne disability index and the impact of educational materials in a Romanian cultural adaptation context.

作者信息

Cretu Stefana, Dascalu Mihai, Salavastru Carmen-Maria

机构信息

"Carol Davila" University of Medicine and Pharmacy, Bucharest, Romania.

Dermatology PhD Student, Dermatology Research Unit, Colentina Clinical Hospital, Bucharest, Romania.

出版信息

J Cosmet Dermatol. 2023 May;22(5):1595-1601. doi: 10.1111/jocd.15609. Epub 2023 Jan 31.

DOI:10.1111/jocd.15609
PMID:36718840
Abstract

BACKGROUND

Acne has a high impact on patients being a chronic, common, and visible skin condition. Knowledge regarding treatment improves outcomes. The Cardiff Acne Disability Index (CADI) is commonly used in clinical practice for quality-of-life assessment. It has been validated in many languages, however, not in Romanian.

AIMS

To validate the Romanian adaptation of the CADI and educational materials for acne patients.

PATIENTS AND METHOD

A 12-week prospective cross-sectional Web-based study, including 3rd- to 5th-year medical students attending our university was conducted. We obtained permission from the CADI copyright owner and performed the steps of the standardized translation process. The Romanian CADI adaptation was delivered online in a test-retest setup, during which participants were offered acne educational materials and completed a knowledge evaluation questionnaire.

RESULTS

A total of 95 complete answers were analyzed. The Romanian CADI adaptation showed good internal consistency, with Cronbach's α = 0.807 in the first application and Cronbach's α = 0.839 in the second. High test-retest reliability was observed, with interclass correlation coefficient ICC = 0.987 and Spearman's rank correlation coefficient r  = 0.970 for the overall CADI scores between the two administrations. The mean baseline score in the knowledge evaluation questionnaire was 15.52 points (±1.556), with a statistically significant improvement after exposure to the educational material (Z = -7.207, p < 0.001). This material was considered useful or very useful by 78(82.8%) participants.

CONCLUSION

Romanian acne patients can benefit from CADI, a reliable and disease-specific tool for quality-of-life evaluation, together with validated, guideline-aligned educational material in their language.

摘要

背景

痤疮作为一种慢性、常见且明显的皮肤疾病,对患者有很大影响。了解治疗方法可改善治疗效果。加的夫痤疮残疾指数(CADI)在临床实践中常用于生活质量评估。它已在多种语言中得到验证,但未在罗马尼亚语中得到验证。

目的

验证CADI的罗马尼亚语改编版以及针对痤疮患者的教育材料。

患者与方法

进行了一项为期12周的前瞻性横断面网络研究,纳入了我校三至五年级的医学生。我们获得了CADI版权所有者的许可,并执行了标准化翻译过程的步骤。罗马尼亚语版CADI以重测设置在线提供,在此期间,为参与者提供痤疮教育材料并完成一份知识评估问卷。

结果

共分析了95份完整答案。罗马尼亚语版CADI显示出良好的内部一致性,首次应用时Cronbach's α = 0.807,第二次应用时Cronbach's α = 0.839。观察到重测信度很高,两次施测之间总体CADI得分的组内相关系数ICC = 0.987,Spearman等级相关系数r = 0.970。知识评估问卷的平均基线得分为15.52分(±1.556),接触教育材料后有统计学意义的改善(Z = -7.207,p < 0.001)。78名(82.8%)参与者认为该材料有用或非常有用。

结论

罗马尼亚痤疮患者可以从CADI中受益(CADI是一种可靠的、针对疾病的生活质量评估工具),以及用他们自己语言编写的经过验证的、符合指南的教育材料。

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