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从父母到 1 型糖尿病患儿照护者的转变:范围综述。

Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review.

机构信息

Unidade de Saúde da Ilha de São Miguel. Ponta Delgada, São Miguel-Açores, Portugal.

Associação Protectora dos Diabéticos de Portugal. Lisboa, Portugal.

出版信息

Rev Bras Enferm. 2023 Jan 30;76(1):e20220201. doi: 10.1590/0034-7167-2022-0201. eCollection 2023.

DOI:10.1590/0034-7167-2022-0201
PMID:36722648
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9885367/
Abstract

OBJECTIVES

to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience.

METHODS

a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist.

RESULTS

we included 31 articles. From the studies, constitutive elements of parents' transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained.

FINAL CONSIDERATIONS

the transition process' characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process.

摘要

目的

绘制并总结现有关于父母向 1 型糖尿病患儿照料者角色过渡的经验的科学证据,以确定对该经验的认识差距。

方法

根据 JBI 方法,在两个数据库中进行了范围综述,遵循系统评价和荟萃分析扩展的首选报告项目清单进行了综述。

结果

共纳入 31 篇文章。从这些研究中发现了父母向 1 型糖尿病患儿照料者角色过渡的经验的构成要素,这些要素集中在体验的本质、所经历的感受和情绪、阻碍条件、促进条件、父母使用的策略以及获得的结果或效果。

最终考虑

确定了过渡过程的特征要素,但没有对其进行理论解释。应该进行更多的研究,以便更深入地了解这一过程。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a412/9885367/93e7b642c7f9/0034-7167-reben-76-01-e20220201-gf01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a412/9885367/93e7b642c7f9/0034-7167-reben-76-01-e20220201-gf01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a412/9885367/93e7b642c7f9/0034-7167-reben-76-01-e20220201-gf01.jpg

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Preparing scoping reviews for publication using methodological guides and reporting standards.使用方法指南和报告标准准备综述性文献以供发表。
Nurs Health Sci. 2020 Mar;22(1):1-4. doi: 10.1111/nhs.12673.
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Parent Employment and School/Daycare Decisions among Parents of Young Children with Type 1 Diabetes.1型糖尿病幼儿父母的就业情况与学校/日托决策
Child Health Care. 2017;46(2):170-180. doi: 10.1080/02739615.2015.1124776. Epub 2016 May 12.
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Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach.
系统评价或范围综述?在选择系统评价或范围综述方法时,作者的指南。
BMC Med Res Methodol. 2018 Nov 19;18(1):143. doi: 10.1186/s12874-018-0611-x.
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PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation.PRISMA 扩展用于范围审查 (PRISMA-ScR): 清单和解释。
Ann Intern Med. 2018 Oct 2;169(7):467-473. doi: 10.7326/M18-0850. Epub 2018 Sep 4.
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Being mothers and fathers of a child with type 1 diabetes aged 1 to 7 years: a phenomenological study of parents' experiences.作为一名1至7岁1型糖尿病患儿的父母:一项关于父母经历的现象学研究。
Int J Qual Stud Health Well-being. 2018 Dec;13(1):1487758. doi: 10.1080/17482631.2018.1487758.
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Lived Experiences of Mothers with Diabetic Children from the Transfer of Caring Role.患有糖尿病子女的母亲在护理角色转变中的生活经历。
Int J Community Based Nurs Midwifery. 2018 Jan;6(1):76-88.
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The Ups and Downs of Parenting Young Children With Type 1 Diabetes: A Crowdsourcing Study.养育1型糖尿病幼儿的起起落落:一项众包研究。
J Pediatr Psychol. 2017 Sep 1;42(8):846-860. doi: 10.1093/jpepsy/jsx056.
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Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study.父母在儿童糖尿病护理方面的经历、需求和偏好:改善护理的建议及互联网的可能作用。一项定性研究。
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Improving communication and recall of information in paediatric diabetes consultations: a qualitative study of parents' experiences and views.改善儿科糖尿病会诊中的信息沟通与记忆:一项关于家长经历和观点的定性研究
BMC Pediatr. 2015 Jun 10;15:67. doi: 10.1186/s12887-015-0388-6.
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