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促进紧急公共卫生需求,改善与部落流行病学中心的数据共享。

Facilitating the Urgent Public Health Need to Improve Data Sharing With Tribal Epidemiology Centers.

机构信息

CDC Foundation, Atlanta, GA, USA.

Great Plains Tribal Leaders' Health Board, Rapid City, SD, USA.

出版信息

Public Health Rep. 2023 Sep-Oct;138(2_suppl):80S-83S. doi: 10.1177/00333549231152197. Epub 2023 Feb 3.

Abstract

Tribal Epidemiology Centers (TECs) are an essential and unique part of the public health system and an important part of federal efforts to improve the health status of American Indian and Alaska Native people. Pursuant to federal statute, TECs serve the 574 federally recognized Tribes (hereinafter, "Tribes") and their members across the United States, as well as American Indian and Alaska Native people in general. The COVID-19 pandemic has highlighted the need for timely, complete, and accurate public health data, particularly for American Indian and Alaska Native communities and others who may have been disproportionately impacted by COVID-19. This article reviews the history and importance of TECs and federal statutes governing TECs' ability to access and use protected health information for public health purposes. TECs and Tribes often encounter difficulty receiving public health data from state and federal agencies despite their designation as "public health authorities" under the Health Insurance Portability and Accountability Act and associated regulations. Limited access to this information hinders the statutory mission of TECs as well as Tribal monitoring of and response to public health threats such as SARS-CoV-2. Agency acknowledgment and compliance with current federal law regarding data sharing with TECs are essential to improve data access and the fragile public health of Tribal communities.

摘要

部落流行病学中心(Tribal Epidemiology Centers,TECs)是公共卫生系统的重要且独特组成部分,也是联邦政府努力改善美洲印第安人和阿拉斯加原住民健康状况的重要组成部分。根据联邦法规,TECs 为美国各地的 574 个联邦认可的部落(以下简称“部落”)及其成员以及一般的美洲印第安人和阿拉斯加原住民提供服务。COVID-19 大流行凸显了及时、完整和准确的公共卫生数据的必要性,特别是对于美洲印第安人和阿拉斯加原住民社区以及其他可能受到 COVID-19 不成比例影响的人群。本文回顾了 TECs 的历史和重要性,以及联邦法规对 TECs 为公共卫生目的获取和使用受保护健康信息的能力的规定。尽管 TECs 和部落根据《健康保险携带和责任法案》及其相关法规被指定为“公共卫生当局”,但他们经常难以从州和联邦机构接收公共卫生数据。有限的信息获取阻碍了 TECs 的法定任务,以及部落对 SARS-CoV-2 等公共卫生威胁的监测和应对。机构承认并遵守当前关于与 TECs 共享数据的联邦法律,对于改善数据获取和部落社区脆弱的公共卫生状况至关重要。

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