Eaf Dancet, L Ameye, W Sermeus, M Welkenhuysen, Kt Zondervan, Cicco C De, V Mijatovic, A Schreurs, D Timmerman, Tm D'Hooghe
Leuven University Fertility Centre, University Hospitals Leuven, Belgium; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
Department of Development and Regeneration, KU Leuven, Belgium.
Best Pract Res Clin Obstet Gynaecol. 2023 Mar;87:102311. doi: 10.1016/j.bpobgyn.2022.102311. Epub 2023 Jan 7.
European patients cross the borders of their countries to receive more patient-centred healthcare. Benchmarking across European countries for the patient-centredness of endometriosis care had yet to be performed. This study proved the factorial structure and reliability of translation of the ENDOCARE questionnaire in nine different languages. Moreover, the benchmark potential of the ENDOCARE questionnaire was shown by the significant between-country variance for case-mix-adjusted overall and dimensional patient-centredness scores, explaining 3-9% of the total variance in patient-centredness assessed across 10 European countries. Compared with the least patient-centred country, endometriosis care was more patient-centred in Denmark, Italy and Belgium. 'Reaching a diagnosis quickly' and 'physicians demarcating the endometriosis complexity level which they can treat' were consistently rated of more-than-average importance and were experienced negatively by more than half of the European sample. National and European policymakers and specialized clinics are prompted to monitor their patient-centredness and set up improvement projects.
欧洲患者跨越国界去接受更以患者为中心的医疗保健。尚未对欧洲各国子宫内膜异位症护理的以患者为中心程度进行基准对比。本研究证实了ENDOCARE问卷九种不同语言翻译版本的因子结构和信度。此外，ENDOCARE问卷的基准潜力体现在病例组合调整后的总体和维度以患者为中心程度得分在国家间存在显著差异，这解释了10个欧洲国家评估的以患者为中心程度总方差的3%至9%。与以患者为中心程度最低的国家相比，丹麦、意大利和比利时的子宫内膜异位症护理更以患者为中心。“快速做出诊断”和“医生界定其能够治疗的子宫内膜异位症复杂程度”一直被评为重要性高于平均水平，且超过一半的欧洲样本对此体验不佳。促使国家和欧洲政策制定者以及专科诊所监测其以患者为中心程度并开展改进项目。
