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让社区参与转化过程:临床与转化科学奖计划中心适应能力与准备情况的环境扫描

Engaging community in the translational process: Environmental scan of adaptive capacity and preparedness of Clinical and Translational Science Award Program hubs.

作者信息

Volkov Boris B, Hoyo Verónica, Hunt Joe

机构信息

University of Minnesota Clinical and Translational Science Institute, Minneapolis, MN, USA.

Institute for Health Informatics and Division of Epidemiology and Community Health, University of Minnesota, Minneapolis, MN, USA.

出版信息

J Clin Transl Sci. 2022 Jun 15;7(1):e1. doi: 10.1017/cts.2022.419. eCollection 2023.

Abstract

This paper is part of the Environmental Scan of Adaptive Capacity and Preparedness of Clinical and Translational Science Award (CTSA) hubs, illuminating challenges, practices, and lessons learned related to CTSA hubs' efforts of engaging community partners to reduce the spread of the virus, address barriers to COVID-19 testing, identify treatments to improve health outcomes, and advance community participation in research. CTSA researchers, staff, and community partners collaborated to develop evidence-based, inclusive, accessible, and culturally appropriate strategies and resources helping community members stay healthy, informed, and connected during the pandemic. CTSA institutions have used various mechanisms to advance co-learning and co-sharing of knowledge, resources, tools, and experiences between academic professionals, patients, community partners, and other stakeholders. Forward-looking and adaptive decision-making structures are those that prioritize sustained relationships, mutual trust and commitment, ongoing communication, proactive identification of community concerns and needs, shared goals and decision making, as well as ample appreciation of community members and their contributions to translational research. There is a strong need for further community-engaged research and workforce training on how to build our collective and individual adaptive capacity to sustain and improve processes and outcomes of engagement with and by communities-in all aspects of translational science.

摘要

本文是临床与转化科学奖(CTSA)中心适应能力与准备情况环境扫描的一部分,阐述了与CTSA中心在以下方面的努力相关的挑战、实践及经验教训:促使社区合作伙伴参与以减少病毒传播、解决新冠病毒检测的障碍、确定改善健康结果的治疗方法以及推动社区参与研究。CTSA的研究人员、工作人员和社区合作伙伴共同努力,制定基于证据、包容、可及且符合文化背景的策略和资源,以帮助社区成员在疫情期间保持健康、了解信息并保持联系。CTSA机构利用各种机制,推动学术专业人员、患者、社区合作伙伴及其他利益相关者之间知识、资源、工具和经验的共同学习与共享。前瞻性和适应性决策结构是那些将持续关系、相互信任与承诺、持续沟通、主动识别社区关切和需求、共同目标与决策制定以及充分认可社区成员及其对转化研究的贡献放在优先位置的结构。迫切需要开展更多社区参与研究和劳动力培训,以提升我们集体和个人的适应能力,从而在转化科学的各个方面维持并改善与社区互动的过程及成果,以及社区发起的互动过程及成果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d2a9/9879920/8c3770025fd2/S2059866122004198_fig1.jpg

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