Eder Milton Mickey, Millay Tamara A, Cottler Linda B
Department of Family Medicine and Community Health, University of Minnesota, Medical School, Minneapolis, MN, USA.
The PACER Group.
J Clin Transl Sci. 2021 Jun 14;5(1):e133. doi: 10.1017/cts.2021.800. eCollection 2021.
Clinical and Translational Science Award Program (CTSA)-funded institutions were charged with developing clinical and translational science programs and transforming clinical research at their institutions. Community engagement (CE) was recognized as a key component and catalyst of that transformation. CE hub capacities for working with communities and translating knowledge into practice have been illustrated through their COVID-19 responses.
CE hub leaders met and discussed their CTSA's early responses regarding the COVID-19 pandemic. The 2-hour discussion was distilled into themes which were sent to the CE hub leaders with a request for written accounts describing actions taken to engage local partners, communities, and institutions. The written reports form the basis for this compendium.
Eighteen institutions submitted written reports describing activities in relation to six themes: (1) listen to the community and respond to concerns, (2) collect data to understand the impact of COVID-19 on distinct communities and groups, (3) communicate science and address misinformation, (4) collaborate with health departments, (5) engage hubs and underrepresented populations in COVID-19 research, and (6) support our own well-being and that of others.
Bidirectional interactions comprise the foundation of CE, which requires trusted partnerships that sustain communication through a series of activities and goals. The nimble responses to the pandemic substantiate the need for CE programs to maintain the infrastructure necessary to achieve the primary CTSA goals of improving health within and across communities and localities as well as expanding research participation of community members.
临床与转化科学奖计划(CTSA)资助的机构负责制定临床与转化科学计划,并在其机构内转变临床研究。社区参与(CE)被视为这种转变的关键组成部分和催化剂。通过对COVID-19的应对措施,已经展示了CE中心与社区合作并将知识转化为实践的能力。
CE中心负责人会面并讨论了其CTSA对COVID-19大流行的早期应对措施。两小时的讨论提炼出了主题,并将这些主题发送给CE中心负责人,要求他们提供书面报告,描述为与当地合作伙伴、社区和机构开展合作所采取的行动。这些书面报告构成了本汇编的基础。
18个机构提交了书面报告,描述了与六个主题相关的活动:(1)倾听社区意见并回应关切,(2)收集数据以了解COVID-19对不同社区和群体的影响,(3)传播科学知识并解决错误信息,(4)与卫生部门合作,(5)让中心和代表性不足的人群参与COVID-19研究,以及(6)支持我们自己和他人的福祉。
双向互动构成了社区参与的基础,这需要通过一系列活动和目标来维持沟通的可信赖伙伴关系。对大流行的灵活应对证实了社区参与计划需要维持必要的基础设施,以实现CTSA的主要目标,即改善社区内部和不同社区之间的健康状况,并扩大社区成员的研究参与度。