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健康研究中使用消费者可穿戴设备的伦理考量。

Ethical considerations for the use of consumer wearables in health research.

作者信息

Sui Anna, Sui Wuyou, Liu Sam, Rhodes Ryan

机构信息

School of Health Studies, Western University, Canada.

School of Exercise Science, Physical and Health Education, University of Victoria, Victoria, Canada.

出版信息

Digit Health. 2023 Feb 1;9:20552076231153740. doi: 10.1177/20552076231153740. eCollection 2023 Jan-Dec.

Abstract

BACKGROUND

The UN's High Commissioner's request for a moratorium on the use and adoption of specific Artificial Intelligence (AI) systems that pose serious risk to human rights, this commentary explores the current environment and future implications of using third-party wearable technologies in research for participants' data privacy and data security. While wearables have been identified as tools for improving users' physical and mental health and wellbeing by providing users with more personalized data and tailored interventions, the use of this technology does not come without concern.

OBJECTIVE

Primarily, as researchers, we are concerned with enmeshment of corporate and research interests and what this can mean for participant data.

METHODS

By drawing on specific sections of the UN Report 'The right to privacy in the digital age', we discuss the conflicts between corporate and research agendas and point out the current and future implications of the involvement of third-party companies for participant data privacy, data security and data usage. Finally, we offer suggestions for researchers and third-party wearable developers for conducting ethical and transparent research with wearable tech.

CONCLUSION

We propose that this commentary be used as a foothold for further discussions about the ethical implications of using third-party wearable tech in research.

摘要

背景

联合国人权事务高级专员要求暂停使用和采用对人权构成严重风险的特定人工智能(AI)系统,本评论探讨了在研究中使用第三方可穿戴技术对参与者数据隐私和数据安全的当前环境及未来影响。虽然可穿戴设备已被视为通过为用户提供更个性化的数据和量身定制的干预措施来改善用户身心健康的工具,但这项技术的使用并非毫无顾虑。

目的

首先,作为研究人员,我们关注企业利益与研究利益的交织以及这对参与者数据意味着什么。

方法

通过借鉴联合国报告《数字时代的隐私权》的特定章节,我们讨论企业议程与研究议程之间的冲突,并指出第三方公司的参与对参与者数据隐私、数据安全和数据使用的当前及未来影响。最后,我们为研究人员和第三方可穿戴设备开发者提供建议,以便利用可穿戴技术进行符合道德规范且透明的研究。

结论

我们建议将本评论作为进一步讨论在研究中使用第三方可穿戴技术的伦理影响的立足点。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0458/9900157/c09c821b7788/10.1177_20552076231153740-fig1.jpg

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