Kennedy Krieger Institute, USA.
The University of Tennessee Health Science Center, USA.
Autism. 2023 Oct;27(7):1856-1875. doi: 10.1177/13623613231152641. Epub 2023 Feb 17.
The topic of how parents react (e.g., how they talk and act) to their child with autism or elevated likelihood of autism, often called parent responsiveness, has been studied by researchers for over 50 years. Many methods for measuring behaviors around parent responsiveness have been created depending on what researchers were interested in discovering. For example, some include only the behaviors that the parent does/says in reacting to something the child does/says. Other systems look at all behaviors in a period of time between child and parent (e.g., who talked/acted first, how much the child or parent said/did). The purpose of this article was to provide a summary of how and what researchers looked at around parent responsiveness, describe the strengths and barriers of these approaches, and suggest a "best practices" method of looking at parent responsiveness. The model suggested could make it more possible to look across studies to compare study methods and results. The model could be used in the future by researchers, clinicians, and policymakers to provide more effective services to children and their families.
父母对自闭症或自闭症高风险儿童的反应方式(例如,他们的言行)一直是研究人员研究的课题,这一课题已经有 50 多年的历史。根据研究人员的研究兴趣,已经创建了许多用于测量父母反应性相关行为的方法。例如,有些方法只包括父母在对孩子的言行做出反应时的行为。其他系统则观察在孩子和父母之间的一段时间内的所有行为(例如,谁先说话/行动,孩子或父母说了/做了多少)。本文的目的是总结研究人员在父母反应性方面的研究方法和关注点,描述这些方法的优缺点,并提出一种观察父母反应性的“最佳实践”方法。建议的模型可以使研究人员更有可能跨研究进行比较,从而比较研究方法和结果。该模型将来可以被研究人员、临床医生和政策制定者用于为儿童及其家庭提供更有效的服务。