Samaroo Kristy, Hosein Amalia, Ali Jameel
Biomedical Engineering, The University of Trinidad & Tobago, Port of Spain, TTO.
Surgery, University of Toronto, Toronto, CAN.
Cureus. 2023 Jan 30;15(1):e34394. doi: 10.7759/cureus.34394. eCollection 2023 Jan.
The perception of survivorship among the cancer communities of the Caribbean is largely unknown. This study focused on determining the perception and interest in cancer survivorship among breast cancer (BC) patients in Trinidad and Tobago, as a preliminary, to introducing a pilot survivorship program and evaluating its impact on this patient population. Participants were given a questionnaire to determine needs, expectations and interest in survivorship care. Baseline measurable outcomes reported in this article include the following: 1. Participants' satisfaction with their medical care follow-up plan (if any), 2. Participants' satisfaction with the amount of information provided by healthcare providers, and 3. Participants' satisfaction with their physician's overall concern about their well-being, ranked on a 5-point Likert scale. Participants also reported on the advice/ guidelines provided by their physicians, after surgery and/or on completion of treatment, what they did to cope with BC, and their expectations of what could have been done to improve the quality of care received. A second questionnaire was then used to measure the level of interest in participating in a Cancer Survivorship Program (CSP) with components such as: nutrition, psychosocial development, spiritual well-being, and yoga and mindfulness. The level of interest was ranked by participants on a 5-point Likert scale. Fifteen themes emerged from participants' responses to the first questionnaire. Nutrition stood out as the module of highest interest, followed by psychosocial development among BC patients.
加勒比地区癌症群体对癌症 survivorship 的认知情况在很大程度上尚不明确。本研究聚焦于确定特立尼达和多巴哥乳腺癌（BC）患者对癌症 survivorship 的认知及兴趣，作为引入一项试点 survivorship 项目并评估其对该患者群体影响的初步工作。参与者填写了一份问卷，以确定他们对 survivorship 护理的需求、期望和兴趣。本文报告的基线可测量结果包括：1. 参与者对其医疗护理随访计划（如有）的满意度；2. 参与者对医疗服务提供者提供的信息量的满意度；3. 参与者对其医生对他们整体健康状况关心程度的满意度，采用 5 点李克特量表进行排名。参与者还报告了他们的医生在手术后和/或完成治疗后提供的建议/指南、他们为应对 BC 所采取的措施，以及他们对本可采取哪些措施来提高所接受护理质量的期望。随后使用第二份问卷来衡量参与癌症 survivorship 项目（CSP）的兴趣程度，该项目包含营养、心理社会发展、精神健康以及瑜伽和正念等内容。参与者采用 5 点李克特量表对兴趣程度进行排名。参与者对第一份问卷的回答中出现了 15 个主题。营养成为最受关注的模块，其次是 BC 患者的心理社会发展。
