Department of Health Education and Health Promotion, Student Research Committee, Mashhad University of Medical Sciences, Mashhad, Iran.
Department of Health Education and Health Promotion, School of Health, Mashhad University of Medical Sciences, Mashhad, Iran.
BMC Neurol. 2023 Mar 6;23(1):98. doi: 10.1186/s12883-023-03148-z.
This study was conducted with the aim of identifying the burden of psychosocial factors on the worsening symptoms of multiple sclerosis.
This as conducted with a qualitative approach and conventional content analysis among patients with Multiple sclerosis in Mashhad. Data were collected through semi-structured interviews with patients with Multiple sclerosis. Twenty-one patients with Multiple sclerosis were selected through purposive sampling and snowball sampling. The data were analyzed using Graneheim and Lundman method. Guba and Lincoln's criteria were used for evaluating research transferability. The data collection and management was performed by using the MAXQADA 10 software.
In explanation of the psychosocial factors of patients with Multiple sclerosis, one category (psychosocial tensions) and three subcategories of stress (physical symptoms, emotional symptoms, and behavioral symptoms), agitation (family disorder, treatment-related concerns, and social relationship concerns), and stigmatization (social stigma and internalized stigma) were extracted.
The results of this study show that patients with Multiple sclerosis are faced with concerns such as stress, agitation, and fear of stigma, and need support and understanding from the family and community to overcome these concerns. Society must base its health policies on addressing the challenges faced by patients. Accordingly, the authors argue that health policies, and consequently, healthcare systems, need to address patients' ongoing challenges as a priority in caring for patients with Multiple sclerosis.
本研究旨在确定心理社会因素对多发性硬化症症状恶化的负担。
这是在马什哈德多发性硬化症患者中进行的定性研究和常规内容分析。通过对多发性硬化症患者进行半结构化访谈来收集数据。通过目的性抽样和滚雪球抽样选择了 21 名多发性硬化症患者。使用 Graneheim 和 Lundman 方法分析数据。Guba 和 Lincoln 的标准用于评估研究的可转移性。使用 MAXQADA 10 软件进行数据收集和管理。
在解释多发性硬化症患者的心理社会因素时，提取了一个类别（心理社会紧张）和三个亚类的压力（身体症状、情绪症状和行为症状）、烦躁（家庭紊乱、治疗相关问题和社会关系问题）和污名化（社会污名和内化污名）。
这项研究的结果表明，多发性硬化症患者面临着诸如压力、烦躁和对污名的恐惧等问题，他们需要家庭和社区的支持和理解来克服这些问题。社会必须基于解决患者面临的挑战来制定卫生政策。因此，作者认为，卫生政策，进而医疗保健系统，需要将患者的持续挑战作为照顾多发性硬化症患者的首要任务。
