Department of Health Education and Health Promotion, School of Health, Mashhad University of Medical Sciences, Mashhad, Iran.
Student Research Committee, Mashhad University of Medical Sciences, Mashhad, Iran.
BMC Womens Health. 2024 Aug 30;24(1):477. doi: 10.1186/s12905-024-03328-0.
Multiple sclerosis (MS) is a debilitating, non-traumatic disease that is common among young adults. Cultural factors, as background factors, can affect how patients adapt and their quality of life. This study aimed to explain the burden of cultural factors on Multiple sclerosis.
This study was conducted with a qualitative approach and conventional content analysis among women with Multiple sclerosis in Mashhad. The data were collected through semi-structured interviews with women with MS. Fifteen patients with Multiple sclerosis were selected using purposeful sampling. The Graneheim and Lundman method was used to analyze the collected data. The transferability of the study was evaluated using the Guba and Lincoln criteria. MAXQADA 10 software was used to manage and analyze the data.
In explanation of the cultural factors of patients with Multiple sclerosis, one category (cultural tensions) and five subcategories (forced communication with spouse's family, definition of women's role in society, people's behavior, social beliefs and isolation of the patient) were extracted.
The results obtained in this study show that female MS patients face various concerns. Overcoming these challenges require a change in the attitude of people in the society towards women with MS, which is important in the context of formulating practical policies to create a suitable culture. Adopted policies should aim to internalize the culture of changing society's views of female MS patients. Therefore, the authors argue that there is a need for cultural policies, followed by the systems implementing these policies to consider the challenges mentioned in this study as a priority for MS patients.
多发性硬化症（MS）是一种使人衰弱的非创伤性疾病，常见于年轻人。文化因素作为背景因素，可以影响患者的适应方式和生活质量。本研究旨在解释文化因素对多发性硬化症的影响。
本研究采用定性方法和常规内容分析，对马什哈德的多发性硬化症女性患者进行研究。通过对多发性硬化症女性患者的半结构式访谈收集数据。采用目的抽样选择了 15 名多发性硬化症患者。采用 Graneheim 和 Lundman 方法对收集到的数据进行分析。采用 Guba 和 Lincoln 标准评估研究的可转移性。使用 MAXQADA 10 软件管理和分析数据。
在解释多发性硬化症患者的文化因素时，提取出一个类别（文化紧张）和五个亚类（与配偶家庭的强制性沟通、社会中女性角色的定义、人们的行为、社会信仰和患者的隔离）。
本研究的结果表明，女性多发性硬化症患者面临着各种问题。克服这些挑战需要改变社会对多发性硬化症女性的态度，这在制定切实可行的政策以创造合适的文化方面很重要。所采用的政策应旨在内化改变社会对女性多发性硬化症患者的看法的文化。因此，作者认为需要制定文化政策，随后是实施这些政策的系统，将本研究中提到的挑战作为多发性硬化症患者的优先事项。
