Hoarding Research Group, Faculty of Health and Life Sciences, Northumbria University, Newcastle upon Tyne, Tyne & Wear, United Kingdom.
Northumbria Healthcare NHS Foundation Trust, Newcastle upon Tyne, Tyne & Wear, United Kingdom.
PLoS One. 2023 Mar 9;18(3):e0282365. doi: 10.1371/journal.pone.0282365. eCollection 2023.
Hoarding disorder is characterised by the acquisition of, and failure to discard large numbers of items regardless of their actual value, a perceived need to save the items and distress associated with discarding them, significant clutter in living spaces that render the activities associated with those spaces very difficult causing significant distress or impairment in functioning. To aid development of an intervention for hoarding disorder we aimed to identify current practice by investigating key stakeholders existing practice regarding identification, assessment and intervention associated with people with hoarding disorder. Two focus groups with a purposive sample of 17 (eight male, nine female) stakeholders representing a range of services from housing, health, and social care were audio recorded, transcribed verbatim and analysed thematically. There was a lack of consensus regarding how hoarding disorder was understood and of the number of cases of hoarding disorder however all stakeholders agreed hoarding disorder appeared to be increasing. The clutter image rating scale was most used to identify people who needed help for hoarding disorder, in addition to other assessments relevant to the stakeholder. People with hoarding disorder were commonly identified in social housing where regular access to property was required. Stakeholders reported that symptoms of hoarding disorder were often tackled by enforced cleaning, eviction, or other legal action however these approaches were extremely traumatic for the person with hoarding disorder and failed to address the root cause of the disorder. While stakeholders reported there was no established services or treatment pathways specifically for people with hoarding disorder, stakeholders were unanimous in their support for a multi-agency approach. The absence of an established multiagency service that would offer an appropriate and effective pathway when working with a hoarding disorder presentation led stakeholders to work together to suggest a psychology led multiagency model for people who present with hoarding disorder. There is currently a need to examine the acceptability of such a model.
囤积症的特点是获取大量物品，且无法丢弃，无论其实际价值如何，都认为有保存这些物品的必要，并因丢弃这些物品而感到痛苦，生活空间杂乱无章，使得与这些空间相关的活动非常困难，导致功能严重受损或障碍。为了帮助开发囤积症的干预措施，我们旨在通过调查关键利益攸关方在识别、评估和干预与囤积症患者相关方面的现有实践来确定当前的实践。我们对 17 名（8 名男性，9 名女性）利益攸关方进行了两次焦点小组讨论，他们代表了住房、卫生和社会保健等一系列服务，对这些讨论进行了录音、逐字记录，并进行了主题分析。虽然利益攸关方对囤积症的理解和囤积症的病例数量没有达成共识，但他们都认为囤积症似乎在增加。除了与利益攸关方相关的其他评估外，最常使用堆积物图像评分量表来识别需要帮助的囤积症患者。通常在需要定期进入物业的社会住房中发现囤积症患者。利益攸关方报告说，囤积症的症状通常通过强制清洁、驱逐或其他法律行动来解决，然而这些方法对囤积症患者来说极其痛苦，且未能解决疾病的根本原因。虽然利益攸关方报告说，没有专门针对囤积症患者的既定服务或治疗途径，但他们一致支持多机构方法。由于缺乏专门针对囤积症患者的既定多机构服务，当遇到囤积症患者时，利益攸关方共同合作，提出了一种针对囤积症患者的以心理学为导向的多机构模式。目前需要研究这种模式的可接受性。
