Dalhammar Karin, Kristensson Jimmie, Malmström Marlene, Rasmussen Birgit H
Institute for Palliative Care, Lund University and Region Skåne, Medicon Village, Hus 404, 223 81, Lund, Sweden; Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Institute for Palliative Care, Lund University and Region Skåne, Medicon Village, Hus 404, 223 81, Lund, Sweden; Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Eur J Oncol Nurs. 2023 Apr;63:102302. doi: 10.1016/j.ejon.2023.102302. Epub 2023 Feb 20.
Getting an incurable oesophageal or gastric cancer diagnosis is a major stressful life event associated with severe physical, psychosocial and existential challenges. To provide timely and efficient support, based on patients' experiences, the aim of the study was to explore how patients newly diagnosed with incurable oesophageal and gastric cancer manage everyday life.
Semi-structured interviews were conducted with 12 patients 1-3 months after being diagnosed with incurable oesophageal or gastric cancer. Four participants were interviewed twice, which resulted in 16 interviews. Data were analysed with qualitative content analysis.
An overall theme, "Striving towards normality in an unpredictable situation", with three related themes - "Trying to comprehend the disease", "Dealing with the consequences of illness" and "Re-evaluating what is important in everyday life" - and seven sub-themes were identified. The participants described an unexpected and unpredictable situation, in which they strived to maintain their normal life. Amidst struggling to manage problems related to eating, fatigue and an incurable diagnosis the participants talked about the importance of focusing on the positive and normal aspects of life.
The findings in this study point to the importance of supporting patients' confidence and skills, particularly with regard to managing eating, so that they can hold on to their normal life as much as possible. The findings further point to the possible benefit of integrating an early palliative care approach and could provide guidance for nurses and other professionals on how to support patients post diagnosis.
被诊断患有无法治愈的食管癌或胃癌是一项重大的、压力巨大的生活事件，会带来严重的身体、心理社会和生存挑战。为了基于患者的经历提供及时有效的支持，本研究的目的是探讨新诊断为无法治愈的食管癌和胃癌的患者如何应对日常生活。
对12名被诊断患有无法治愈的食管癌或胃癌1至3个月后的患者进行了半结构式访谈。4名参与者接受了两次访谈，共进行了16次访谈。采用定性内容分析法对数据进行分析。
确定了一个总体主题“在不可预测的情况下努力回归正常”，以及三个相关主题——“试图理解疾病”、“应对疾病后果”和“重新评估日常生活中重要的事情”——和七个子主题。参与者描述了一种意外且不可预测的情况，他们在其中努力维持正常生活。在努力应对与饮食、疲劳和无法治愈的诊断相关的问题时，参与者谈到了关注生活中积极和正常方面的重要性。
本研究的结果表明支持患者信心和技能的重要性，特别是在饮食管理方面，以便他们能够尽可能坚持正常生活。研究结果还指出了整合早期姑息治疗方法的可能益处，并可为护士和其他专业人员提供关于如何在诊断后支持患者的指导。
