School of Health Sciences, Institute of Nursing, Zurich University of Applied Sciences, Winterthur, Switzerland.
Department Nursing Science and Gerontology, Institute of Nursing, Private University of Health Sciences Medical Informatics and Technology, Hall in Tyrol, Austria.
Chron Respir Dis. 2023 Jan-Dec;20:14799731231163873. doi: 10.1177/14799731231163873.
The aim of this study is to identify the sources of illness-related emotional distress from the perspective of individuals living with mild to severe chronic obstructive pulmonary disease (COPD).
A qualitative study design with purposive sampling was applied at a Swiss University Hospital. Eleven interviews were conducted with individuals who suffered from COPD. To analyze data, framework analysis was used, guided by the recently presented model of illness-related emotional distress.
Six main sources for COPD-related emotional distress were identified: physical symptoms, treatment, restricted mobility, restricted social participation, unpredictability of disease course and COPD as stigmatizing disease. Additionally, life events, multimorbidity and living situation were found to be sources of non-COPD-related distress. Negative emotions ranged from anger, sadness, and frustration to desperation giving rise to the desire to die. Although most patients experience emotional distress regardless of the severity of COPD, the sources of distress appear to have an individual manifestation.
There is a need for a careful assessment of emotional distress among patients with COPD at all stages of the disease to provide patient-tailored interventions.
本研究旨在从轻度至重度慢性阻塞性肺疾病（COPD）患者的角度出发，确定与疾病相关的情绪困扰的来源。
在瑞士一所大学医院采用了定性研究设计和目的性抽样。对患有 COPD 的 11 名患者进行了访谈。为了分析数据，我们使用了框架分析，该分析以最近提出的与疾病相关的情绪困扰模型为指导。
确定了 COPD 相关情绪困扰的六个主要来源：身体症状、治疗、活动受限、社会参与受限、疾病过程的不可预测性以及 COPD 作为污名化疾病。此外，生活事件、多种合并症和生活状况被认为是与非 COPD 相关的困扰的来源。负面情绪从愤怒、悲伤和沮丧到绝望，甚至产生了想死的念头。尽管大多数患者无论 COPD 的严重程度如何都经历着情绪困扰，但困扰的来源似乎具有个体表现。
需要在 COPD 患者疾病的各个阶段仔细评估情绪困扰，以便提供针对患者的干预措施。
