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患者对 COPD 焦虑和抑郁管理个体化干预(TANDEM)的看法:一项定性评估。

Patient perspectives on the Tailored intervention for Anxiety and Depression Management in COPD (TANDEM): a qualitative evaluation.

机构信息

Queen Mary University of London, London, UK.

University of Birmingham, Birmingham, UK.

出版信息

BMC Health Serv Res. 2024 Aug 21;24(1):960. doi: 10.1186/s12913-024-11370-9.

Abstract

BACKGROUND

Chronic obstructive pulmonary disease (COPD) is commonly associated with anxiety/depression which can affect self-management and quality of life. The TANDEM trial evaluated a cognitive behavioural approach intervention targeting COPD-related symptoms of anxiety and/or depression, comprising up to eight one-to-one sessions delivered by respiratory healthcare professionals prior to pulmonary rehabilitation (PR). The intervention showed no improvement in anxiety/depression or uptake/completion of PR. We present patient perspectives of the intervention to help understand these results.

METHOD

Semi-structured individual interviews, using a semi-structured topic guide informed by Sekhon's Theoretical Framework of Acceptability, were conducted with 19 patients between September 2019 and April 2020. The interviews were audio-recorded, transcribed verbatim and analysed thematically.

RESULTS

The following could have limited the impact of the intervention: (1) The lives of patients were complex and commonly affected by competing comorbidities or other external stressors which they managed through previously adopted long-standing coping strategies. (2) Some patients were reluctant to talk about their mood despite the Facilitators' training and person centred-skills which aimed to enable patients to talk freely about mood. (3) The intervention handouts and 'home-practice' were perceived as helpful for some, but not suitable for all. (4) Many patients perceived improvements in their physical and mental health, but this was not sustained due to a mix of personal and external factors, and some did not perceive any benefits. (5) PR non-attendance/non-completion was a result of personal and PR service-related reasons. (6) Discussing COPD and mental health with the Facilitator was a novel experience. Many patients felt that TANDEM could be of benefit if it was offered earlier on/at different time points in the COPD illness journey.

CONCLUSION

We found the delivery of TANDEM prior to PR was not helpful for patients with advanced COPD often experiencing other comorbidities, and/or difficult personal/external events. These patients already utilised long-standing coping strategies to manage their COPD. Holistic interventions, that address the impact of COPD in relation to wider aspects of a patients' life, may be more beneficial.

TRIAL REGISTRATION

ISRCTN Registry 59,537,391. Registration date 20 March 2017.

摘要

背景

慢性阻塞性肺疾病(COPD)常伴有焦虑/抑郁,这可能会影响自我管理和生活质量。TANDEM 试验评估了一种针对 COPD 相关焦虑和/或抑郁症状的认知行为方法干预,包括由呼吸保健专业人员在肺康复(PR)之前提供多达 8 次一对一的治疗。该干预措施并未改善焦虑/抑郁或 PR 的参与度/完成度。我们介绍了患者对干预措施的看法,以帮助理解这些结果。

方法

2019 年 9 月至 2020 年 4 月,我们对 19 名患者进行了半结构化的个体访谈,访谈采用了由 Sekhon 的可接受性理论框架启发的半结构化主题指南。访谈进行了录音,逐字记录,并进行了主题分析。

结果

以下因素可能限制了干预措施的效果:(1)患者的生活复杂,常常受到其他共病或其他外部压力源的影响,他们通过以前采用的长期应对策略来应对这些问题。(2)尽管治疗师接受过培训并采用以人为本的技能,旨在使患者能够自由地谈论情绪,但有些患者还是不愿意谈论自己的情绪。(3)干预措施的讲义和“家庭作业”对一些人有帮助,但不适合所有人。(4)许多患者认为自己的身心健康有所改善,但由于个人和外部因素的综合影响,这种改善无法持续,有些人则认为没有任何益处。(5)PR 的不参与/未完成是由于个人和 PR 服务相关的原因。(6)与治疗师讨论 COPD 和心理健康是一种新的体验。许多患者认为,如果 TANDEM 在 COPD 疾病进展的早期/不同时间点提供,它可能会有所帮助。

结论

我们发现,在 PR 之前提供 TANDEM 对患有晚期 COPD 的患者没有帮助,这些患者经常患有其他共病,或/和经历着困难的个人/外部事件。这些患者已经采用了长期的应对策略来管理自己的 COPD。可能更有益的是针对 COPD 对患者生活更广泛方面的影响的整体干预措施。

试验注册

ISRCTN Registry,537391。注册日期 2017 年 3 月 20 日。

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