Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Rostock/Greifswald, Greifswald, Germany.
Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Witten, Germany.
Health Expect. 2023 Jun;26(3):1009-1018. doi: 10.1111/hex.13748. Epub 2023 Mar 12.
Currently, there is a lack of interaction between research and healthcare practice. As a result, research findings reach healthcare practice only late, and topics relevant to practice are often not known in research. Involving people living with dementia (PlwD), their relatives and healthcare providers in dementia care research can accelerate this process. For inclusion, firm and reliable structures are needed, which are to be established with the help of the Translational Network for Dementia Care Research in Germany. However, there is only limited knowledge about the priorities, expectations and conditions of stakeholders (healthcare providers and dementia researchers) for such cooperation within a network.
The aim is to gather stakeholders' views on (i) future research topics to be addressed within the dementia care research network, (ii) the nature of collaboration within the network and (iii) the facilitating and hindering factors for establishing such a network.
Within an exploratory sequential mixed-method study, we interviewed 87 stakeholders within eleven semistructured focus group interviews. The interviews were transcribed, pseudonymized and analyzed using qualitative content analysis. The qualitative data were analyzed with MAXQDA. Based on the qualitative results found in the focus group interviews, a supplementary online questionnaire was developed to prioritise and rank these findings afterwards.
Stakeholders prioritized a comprehensible transfer of research results into practice, increased involvement of PlwD and their relatives (additionally marginalized groups such as people with a migrant background) in research and exchange between researchers. Cooperation should preferably occur in a regional context with local contacts, and the latest research results should be made available via an online database. The stakeholders' time, finances and human resources should be considered.
Stakeholders have partly similar preferences and goals for cooperation and involvement, emphasizing that such interaction in a network offers the possibility of long-term, effective collaboration and added value for practice and research.
For this study, dementia healthcare providers and dementia care researchers were asked about their perspectives. Their involvement is further elucidated in the manuscript text.
目前，研究与医疗保健实践之间缺乏互动。结果，研究结果很晚才到达医疗保健实践，而研究中通常不知道与实践相关的主题。让痴呆症患者（PlwD）、他们的亲属和医疗保健提供者参与痴呆症护理研究可以加速这一过程。为了实现这一目标，需要建立坚定可靠的结构，这将在德国痴呆症护理研究转化网络的帮助下建立。然而，对于网络内这种合作的利益相关者（医疗保健提供者和痴呆症研究人员）的优先事项、期望和条件，我们的了解是有限的。
本研究旨在收集利益相关者对（i）在痴呆症护理研究网络内要解决的未来研究主题、（ii）网络内合作的性质以及（iii）建立此类网络的促进和阻碍因素的看法。
在一项探索性顺序混合方法研究中，我们在 11 次半结构式焦点小组访谈中采访了 87 名利益相关者。访谈内容被转录、匿名并使用定性内容分析进行分析。使用 MAXQDA 对定性数据进行分析。根据焦点小组访谈中发现的定性结果，开发了一份补充在线问卷，以优先排序和评估这些发现。
利益相关者优先考虑将研究结果更易于理解地转化为实践，增加 PlwD 及其亲属（以及边缘化群体，如具有移民背景的人）的参与，并促进研究人员之间的交流。合作最好在具有地方联系的区域背景下进行，最新的研究结果应通过在线数据库提供。应考虑利益相关者的时间、财务和人力资源。
利益相关者在合作和参与方面有部分相似的偏好和目标，强调网络中的这种互动为实践和研究提供了长期、有效的合作和附加值的可能性。
在这项研究中，痴呆症医疗保健提供者和痴呆症护理研究人员被要求提供他们的观点。他们的参与在本文案中进一步阐述。
