Department of Neurology, Affiliated Hospital No. 2 of Nantong University, Nantong 226000, China.
Department of Nursing, Affiliated Hospital No. 2 of Nantong University, Nantong 226000, China.
Int J Clin Pract. 2023 Mar 3;2023:9514851. doi: 10.1155/2023/9514851. eCollection 2023.
To investigate the awareness of dysphagia-related complications and risks and the importance of early intervention in patients with Parkinson's disease (PD).
Using the phenomenological approach of the qualitative study, 18 patients with PD in a Grade A tertiary hospital in Nantong were selected, and semistructured personal in-depth interviews were conducted. The interview content was analyzed using Colaizzi's seven-step method, and the topics and subtopics were further refined.
Awareness of dysphagia-related complications and risks and the importance of early intervention in patients with PD can be summarized into three topics: lack of knowledge about PD and dysphagia, changes in emotional cognition, and low need for early intervention for dysphagia.
Patients with PD have a low awareness of dysphagia, do not follow any preventative measures, and have difficulty in recognizing the disease symptoms; hence, there is a vital need for early intervention. Medical staff need to create awareness among patients and their families, provide health education through multiple channels, popularize the knowledge of PD complications such as dysphagia, improve patient compliance with respect to medication, regular consultation, and medical treatment, guide the transformation of negative emotions in patients to positive emotions, and help patients with PD to actively prevent dysphagia and other complications and improve their quality of life.
调查帕金森病（PD）患者对吞咽相关并发症和风险的认知，以及早期干预的重要性。
采用质性研究的现象学方法，选取南通市某三级甲等医院的 18 例 PD 患者进行半结构式个人深入访谈。采用 Colaizzi 的 7 步分析法对访谈内容进行分析，并进一步提炼主题和子主题。
PD 患者对吞咽相关并发症和风险的认知，以及早期干预的重要性可归纳为 3 个主题：对 PD 和吞咽障碍缺乏认识、情绪认知变化和对吞咽障碍早期干预的需求低。
PD 患者对吞咽障碍的认知程度较低，不采取任何预防措施，且难以识别疾病症状，因此需要进行早期干预。医护人员需要提高患者及其家属的认知，通过多种渠道提供健康教育，普及 PD 并发症（如吞咽障碍）的相关知识，提高患者对药物治疗、定期咨询和治疗的依从性，引导患者将负性情绪转化为正性情绪，帮助 PD 患者积极预防吞咽障碍等并发症，提高生活质量。
