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认知障碍个体的分布式照护:一例报告

Distributed Caregiving for Cognitively Impaired Individuals: A Case Report.

作者信息

Alemi Yara, Loughman Blaise, Uriyo Maria

机构信息

Medicine, Royal College of Surgeons in Ireland, Dublin, IRL.

Health Administration and Policy, George Mason University, Fairfax, USA.

出版信息

Cureus. 2023 Feb 6;15(2):e34677. doi: 10.7759/cureus.34677. eCollection 2023 Feb.

Abstract

Many caregivers of people with cognitive impairment spend a significant amount of their time helping patients with instrumental daily functions. Distributed caregiving is an innovative model designed to reduce an individual caregiver's time burden and increase the likelihood of continued independent living for the patient. Echo Show and Google Home platforms were used to enable the participation of remote family members in caregiving, specifically the socialization and entertainment of a person with cognitive impairment. Caregiver interviews, review of medical records, and case study analysis were used to measure caregiver burden, after distributing some components of caregiving to distant family members with human-in-the-loop artificial intelligence. This case explores the use of Alexa, Echo Show, and other commercial technologies in the management of a patient with cognitive impairment. The human-in-the-loop system introduced in this case study is a creative, accessible, low-cost, and sustainable way to potentially reduce caregiver burden and improve patient outcomes with targeted intervention. Targeted distributed caregiving reduced time spent in caregiving, reduced caregiver guilt and frustration, improved patient's compliance with requests for behavior changes (e.g., voiding before leaving the house), and improved the relationship between the caregiver and the person with cognitive impairment. This case study demonstrates how distributed caregiving, including human-in-the-loop artificial intelligence, can lead to better use of technology in reducing the social isolation of persons with cognitive impairment and in reducing caregiver burden.

摘要

许多认知障碍患者的照料者会花费大量时间帮助患者完成日常工具性活动。分布式照护是一种创新模式,旨在减轻个体照料者的时间负担,并增加患者持续独立生活的可能性。利用Echo Show和谷歌家居平台,让远方的家庭成员参与照护,特别是对认知障碍患者进行社交和娱乐活动。在将部分照护工作分配给参与人工智能的远方家庭成员后,通过照料者访谈、病历审查和案例研究分析来衡量照料者的负担。本案例探讨了Alexa、Echo Show和其他商业技术在管理认知障碍患者中的应用。本案例研究中引入的参与人工智能的系统是一种创新、便捷、低成本且可持续的方式,有可能通过有针对性的干预减轻照料者负担并改善患者的治疗效果。有针对性的分布式照护减少了照护时间,减轻了照料者的内疚感和挫败感,提高了患者对行为改变要求(如出门前排尿)的依从性,并改善了照料者与认知障碍患者之间的关系。本案例研究展示了包括参与人工智能的分布式照护如何能够更好地利用技术来减少认知障碍患者的社会隔离并减轻照料者负担。

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