设计公平、透明的社区参与式灾害研究。
Designing Equitable, Transparent Community-Engaged Disaster Research.
作者信息
Rohlman Diana, Samon Samantha, Allan Sarah, Barton Michael, Dixon Holly, Ghetu Christine, Tidwell Lane, Hoffman Peter, Oluyomi Abiodun, Symanski Elaine, Bondy Melissa, Anderson Kim
机构信息
Oregon State University.
Baylor College of Medicine.
出版信息
Citiz Sci. 2022;7(1). doi: 10.5334/cstp.443. Epub 2022 May 19.
Abstract
Disaster research faces significant infrastructure challenges: regional and federal coordination, access to resources, and community collaboration. Disasters can lead to chemical exposures that potentially impact human health and cause concern in affected communities. Community-engaged research, which incorporates local knowledge and voices, is well-suited for work with communities that experience impacts of environmental exposures following disasters. We present three examples of community-engaged disaster research (CEnDR) following oil spills, hurricanes, and wildfires, and their impact on long-term social, physical, and technical community infrastructure. We highlight the following CEnDR structures: researcher/community networks; convenient research tools; adaptable data collection modalities for equitable access; and return of data.
摘要
灾害研究面临重大的基础设施挑战
区域和联邦协调、资源获取以及社区合作。灾害可能导致化学物质暴露，这有可能影响人类健康并引发受灾社区的担忧。社区参与式研究纳入了当地知识和声音，非常适合与经历灾害后环境暴露影响的社区开展合作。我们展示了三个社区参与式灾害研究（CEnDR）的例子，涉及石油泄漏、飓风和野火及其对长期社会、物理和技术社区基础设施的影响。我们重点介绍了以下CEnDR结构：研究人员/社区网络；便捷的研究工具；适用于公平获取的可调整数据收集方式；以及数据反馈。
相似文献
1
Designing Equitable, Transparent Community-Engaged Disaster Research.设计公平、透明的社区参与式灾害研究。
Citiz Sci. 2022;7(1). doi: 10.5334/cstp.443. Epub 2022 May 19.
2
Beyond the black stump: rapid reviews of health research issues affecting regional, rural and remote Australia.超越黑木树：影响澳大利亚地区、农村和偏远地区的健康研究问题的快速综述。
Med J Aust. 2020 Dec;213 Suppl 11:S3-S32.e1. doi: 10.5694/mja2.50881.
3
Conducting an immersive community-based assessment of post-hurricane experience among Puerto Ricans: lived experience of medical ecology in an environmental disaster and migration.对波多黎各人飓风后经历进行沉浸式社区评估：环境灾难和移民中的医学生态学的生活体验。
BMC Public Health. 2020 Oct 29;20(1):1628. doi: 10.1186/s12889-020-09735-w.
4
Still Burning: An Exploration of the Impacts of the 2018/2019 Tasmanian Summer Bushfires on Community Pharmacy Operations in Affected Communities.仍在燃烧：2018/2019 年塔斯马尼亚夏季丛林大火对受影响社区社区药房运营影响的探索。
Prehosp Disaster Med. 2020 Dec;35(6):612-618. doi: 10.1017/S1049023X20001077. Epub 2020 Sep 10.
5
Health and social impacts of California wildfires and the deficiencies in current recovery resources: An exploratory qualitative study of systems-level issues.加利福尼亚野火的健康和社会影响，以及当前恢复资源的不足：对系统层面问题的探索性定性研究。
PLoS One. 2021 Mar 26;16(3):e0248617. doi: 10.1371/journal.pone.0248617. eCollection 2021.
6
Assessing the national capacity for disaster research response (DR2) within the NIEHS Environmental Health Sciences Core Centers.评估 NIEHS 环境健康科学核心中心内的灾害研究应对能力 (DR2)。
Environ Health. 2019 Jul 4;18(1):61. doi: 10.1186/s12940-019-0498-y.
7
Off the rails in rural South Carolina: a qualitative study of healthcare provider perspectives on the long-term health impact of the Graniteville train disaster.南卡罗来纳州农村地区偏离正轨：一项关于医疗服务提供者对格兰尼特维尔火车灾难长期健康影响看法的定性研究
Rural Remote Health. 2016 Jul-Sep;16(3):3906. Epub 2016 Sep 24.
8
From Leaders, For Leaders: Advice From the Lived Experience of Leaders in Community Health Sector Disaster Recovery After Hurricanes Irene and Sandy.致领导者，来自领导者：艾琳飓风和桑迪飓风过后社区卫生部门灾难恢复中领导者亲身经历的建议。
Disaster Med Public Health Prep. 2016 Aug;10(4):623-30. doi: 10.1017/dmp.2016.92. Epub 2016 Jun 20.
9
Three case studies of community behavioral health support from the US Department of Veterans Affairs after disasters.美国退伍军人事务部在灾难后提供社区行为健康支持的三个案例研究。
BMC Public Health. 2021 Apr 1;21(1):639. doi: 10.1186/s12889-021-10650-x.
10
Investigating the experience of local community networks of disaster self-management: A qualitative study in Thailand.调查当地社区灾害自我管理网络的经验：泰国的一项定性研究。
Indian J Public Health. 2020 Oct-Dec;64(4):381-385. doi: 10.4103/ijph.IJPH_92_20.
引用本文的文献
1
Assessing Wildfire Impact on Diffusive Flux of Parent and Alkylated PAHs: A Pilot Study of Soil-Air Chemical Movement before, during, and after Wildfires.评估野火对母体和烷基化多环芳烃扩散通量的影响：一项关于野火前、野火期间和野火后土壤-空气化学迁移的初步研究。
Environ Sci Technol. 2024 Dec 31;58(52):23117-23126. doi: 10.1021/acs.est.4c09139. Epub 2024 Dec 17.
2
3
Exploring barriers and facilitators of implementing an at-home SARS-CoV-2 antigen self-testing intervention: The Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) initiatives.探索实施家庭 SARS-CoV-2 抗原自我检测干预措施的障碍和促进因素：弱势群体快速诊断加速（RADx-UP）计划。
PLoS One. 2023 Nov 16;18(11):e0294458. doi: 10.1371/journal.pone.0294458. eCollection 2023.
4
Expanding the access of wearable silicone wristbands in community-engaged research through best practices in data analysis and integration.通过数据分析与整合的最佳实践，扩大可穿戴硅胶腕带在社区参与研究中的应用范围。
bioRxiv. 2023 Oct 2:2023.09.29.560217. doi: 10.1101/2023.09.29.560217.
5
Invited Perspective: Making the Implicit Explicit-Connecting Environmental Health Literacy and Exposure Report-Back.特邀观点：使隐性内容显性化——连接环境卫生素养与暴露反馈
Environ Health Perspect. 2023 Sep;131(9):91301. doi: 10.1289/EHP13493. Epub 2023 Sep 8.
6
Silicone wristbands as personal passive sampling devices: Current knowledge, recommendations for use, and future directions.硅橡胶腕带作为个人被动采样器：当前的知识、使用建议和未来方向。
Environ Int. 2022 Nov;169:107339. doi: 10.1016/j.envint.2022.107339. Epub 2022 Jun 16.
7
Associating Increased Chemical Exposure to Hurricane Harvey in a Longitudinal Panel Using Silicone Wristbands.使用硅橡胶手环追踪研究化学暴露与哈维飓风的关联性。
Int J Environ Res Public Health. 2022 May 30;19(11):6670. doi: 10.3390/ijerph19116670.
本文引用的文献
1
A best-worst scaling experiment to prioritize concern about ethical issues in citizen science reveals heterogeneity on people-level v. data-level issues.一项最佳-最差标度实验对公民科学中的伦理问题进行了优先排序，揭示了人们对数据层面问题的关注存在异质性。
Sci Rep. 2021 Sep 27;11(1):19119. doi: 10.1038/s41598-021-96743-4.
2
Fine Particles in Wildfire Smoke and Pediatric Respiratory Health in California.野火烟雾中的细颗粒物与加利福尼亚州儿童的呼吸健康
Pediatrics. 2021 Apr;147(4). doi: 10.1542/peds.2020-027128. Epub 2021 Mar 23.
3
Responding to Natural and Industrial Disasters: Partnerships and Lessons Learned.应对自然灾害和工业灾害：伙伴关系与经验教训。
Disaster Med Public Health Prep. 2022 Jun;16(3):885-888. doi: 10.1017/dmp.2020.467. Epub 2021 Mar 16.
4
Houston hurricane Harvey health (Houston-3H) study: assessment of allergic symptoms and stress after hurricane Harvey flooding.休斯顿哈维飓风健康研究（休斯顿-3H）：哈维飓风洪水后过敏症状和压力评估。
Environ Health. 2021 Jan 19;20(1):9. doi: 10.1186/s12940-021-00694-2.
5
Addressing power dynamics in community-engaged research partnerships.解决社区参与式研究伙伴关系中的权力动态问题。
J Patient Rep Outcomes. 2020 Apr 5;4(1):24. doi: 10.1186/s41687-020-00191-z.
6
Enhancing community preparedness: an inventory and analysis of disaster citizen science activities.增强社区备灾能力：灾害公民科学活动的清单和分析。
BMC Public Health. 2019 Oct 23;19(1):1356. doi: 10.1186/s12889-019-7689-x.
7
Power Dynamics in Community-Based Participatory Research: A Multiple-Case Study Analysis of Partnering Contexts, Histories, and Practices.基于社区的参与性研究中的权力动态：合作背景、历史与实践的多案例研究分析
Health Educ Behav. 2019 Oct;46(1_suppl):19S-32S. doi: 10.1177/1090198119852998.
8
Assessing the national capacity for disaster research response (DR2) within the NIEHS Environmental Health Sciences Core Centers.评估 NIEHS 环境健康科学核心中心内的灾害研究应对能力 (DR2)。
Environ Health. 2019 Jul 4;18(1):61. doi: 10.1186/s12940-019-0498-y.
9
Development of an environmental health tool linking chemical exposures, physical location and lung function.开发一种环境健康工具，将化学暴露、物理位置和肺功能联系起来。
BMC Public Health. 2019 Jul 1;19(1):854. doi: 10.1186/s12889-019-7217-z.
10
A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community.描述一种社区参与式方法评估美国原住民社区多环芳烃暴露情况的案例研究。
Int J Environ Res Public Health. 2019 Jan 24;16(3):327. doi: 10.3390/ijerph16030327.
Zotero 插件