Soares-Pinto Igor, Braga Ana Margarida Pinto, Santos Isabel Maria Ribeiro Morais Araujo, Ferreira Natália Maria Ribeiro Gomes, Silva Sandra Cristina da Rocha E, Alves Paulo Jorge
Instituto de Ciências da Saúde, Universidade Católica Portuguesa, Porto, Portugal.
Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa, Oliveira de Azeméis, Portugal.
JMIR Hum Factors. 2023 Mar 13;10:e39826. doi: 10.2196/39826.
The construction of an elimination stoma has a physical, psychological, and social impact on the person. The development of stoma self-care competence contributes to the adaptation to a new health condition and improvement of quality of life. eHealth refers to everything associated with information and communication technology and health care, including telemedicine, mobile health, and health informatics. The use of eHealth platforms by the person with an ostomy, as a digital application that includes websites and mobile phone apps, can bring scientific knowledge and well-informed practices to individuals, families, and communities. It also allows functionalities that enable the person to describe and identify early signs and symptoms and precursors of complications and to be guided to an adequate health response for their problems.
This study aimed to define the most relevant content and features to promote ostomy self-care integrated into an eHealth platform as a digital app or website to be used by patients for self-management of stoma care.
We developed a descriptive, exploratory study with a qualitative approach using the focus group methodology, which was oriented to reach a consensus of at least 80%. A convenience sample of 7 participants consisting of stomatherapy nurses was used. The focus group discussion was recorded, and field notes were taken. The focus group meeting was fully transcribed, and a qualitative analysis was performed. The research question was: Which content and features for ostomy self-care promotion should be integrated into an eHealth platform as a digital app or website?
An eHealth platform, which can be a smartphone app or website, for people with ostomy should provide content aimed at promoting self-care, namely in the field of knowledge and self-monitoring, as well as the possibility of interacting with a stomatherapy care nurse.
The stomatherapy nurse has a decisive role in promoting adaptation to life with a stoma, namely through the promotion of stoma self-care. Technological evolution has emerged as a useful tool to enhance nursing interventions and promote self-care competence. The development of an eHealth platform aimed at promoting ostomy self-care should include the capabilities for telehealth and help with decision-making regarding self-monitoring and seeking differentiated care.
造口术的构建对患者的身体、心理和社会都会产生影响。造口自我护理能力的发展有助于患者适应新的健康状况并提高生活质量。电子健康是指与信息通信技术和医疗保健相关的一切，包括远程医疗、移动健康和健康信息学。造口患者使用电子健康平台，作为一种包括网站和手机应用程序的数字应用，可以为个人、家庭和社区带来科学知识和明智的做法。它还具备一些功能，使患者能够描述和识别并发症的早期迹象、症状及先兆，并为其问题获得适当的健康应对指导。
本研究旨在确定最相关的内容和功能，以促进将造口自我护理整合到一个电子健康平台中，作为患者用于造口护理自我管理的数字应用程序或网站。
我们采用焦点小组方法开展了一项描述性、探索性的定性研究，目标是达成至少80%的共识。使用了由造口治疗护士组成的7名参与者的便利样本。记录焦点小组讨论情况并做现场笔记。对焦点小组会议进行完整转录并进行定性分析。研究问题是：应将哪些促进造口自我护理的内容和功能整合到作为数字应用程序或网站的电子健康平台中？
一个面向造口患者的电子健康平台，可以是智能手机应用程序或网站，应提供旨在促进自我护理的内容，即在知识和自我监测领域，以及与造口治疗护理护士互动的可能性。
造口治疗护士在促进患者适应造口生活方面具有决定性作用，即通过促进造口自我护理来实现。技术发展已成为增强护理干预和促进自我护理能力的有用工具。旨在促进造口自我护理的电子健康平台的开发应包括远程医疗功能以及在自我监测和寻求个性化护理方面的决策帮助。
