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促进西澳大利亚地区和偏远地区的自愿协助死亡:改革立法和实施阶段的有针对性举措。

Facilitating regional and remote access to voluntary assisted dying in Western Australia: targeted initiatives during the law-making and implementation stages of reform.

机构信息

Australian Centre for Health Law Research, Faculty of Business and Law, Queensland University of Technology, 2 George St, Brisbane, Qld 4000, Australia

出版信息

Rural Remote Health. 2023 Mar;23(1):7522. doi: 10.22605/RRH7522. Epub 2023 Mar 14.

DOI:10.22605/RRH7522
PMID:36914962
Abstract

Australians living in regional and remote communities face several barriers when accessing high quality health care. Voluntary assisted dying (VAD), a new and sensitive end-of-life option, presents a new challenge for residents living in these communities. Western Australia (WA) is the second Australian state to implement VAD laws and, to date, is the jurisdiction with the greatest need to address access inequities in regional and remote communities due to its vast area. This article identifies and explores initiatives introduced by the WA Government to address regional and remote access inequities in each of the two stages of the reform process: the stage of the reform process leading up to passing the law ('law-making stage'), and the stage of the reform process after the law was passed and prior to it commencing operation ('implementation stage'). The analysis reveals that several initiatives were implemented during each of the law-making and implementation stages of reform. Initiatives introduced in the law-making stage through inclusion in the legislation itself included dedicated guiding principles promoting equality of access for regional and remote residents, broadened qualification requirements for medical practitioners who can participate in VAD, allowing nurse practitioner administration, and mandating that statistics relating to regional and remote access are recorded and reported. Other initiatives dedicated to facilitating regional and remote access were not specifically provided for by legislation but were introduced during the implementation stage of the reform process. These include the establishment of a Statewide Care Navigator Service that administers a Regional Access Support Scheme and ensuring that the Statewide Pharmacy Service is accessible to regional and remote residents. Other initiatives intended to facilitate regional and remote access were provided for in legislation but given further content during the implementation stage. These include an access standard (contents determined by the CEO during implementation) and telehealth (supporting guidance around lawful use issued by the WA Government during implementation). This policy report reveals that WA took a considered and targeted focus to address regional and remote access in both the law-making and implementation stages of reform. Given VAD in WA is still in the early stages of its operation, it is too soon to determine how effective these initiatives have been in promoting regional and remote access to VAD in WA. Careful evaluation of these initiatives will be crucial to monitor their effectiveness and to assess whether additional measures are needed. Reflecting on the WA experience will also be valuable for other states as they legalise VAD and develop (and adapt) their own access initiatives.

摘要

澳大利亚居住在偏远地区的居民在获得高质量医疗保健方面面临着多种障碍。自愿协助死亡(VAD)是一种新的、敏感的临终选择,这对居住在这些社区的居民来说是一个新的挑战。西澳大利亚州(WA)是第二个实施 VAD 法律的澳大利亚州,迄今为止,由于其地域广阔,WA 是最需要解决区域和偏远社区准入不平等问题的司法管辖区。本文确定并探讨了 WA 政府在改革过程的两个阶段(即制定法律阶段和法律通过后实施阶段)中为解决偏远地区准入不平等问题而采取的举措:改革过程的制定法律阶段和法律通过后实施阶段。分析结果表明,在改革的制定法律和实施阶段都实施了几项举措。在制定法律阶段,通过立法本身纳入了一些专门的指导原则,促进了区域和偏远居民平等获得服务的机会,扩大了参与 VAD 的医生的资格要求,允许护士从业者进行管理,并规定必须记录和报告与区域和远程访问相关的统计数据。其他专门为促进区域和远程访问而设立的举措没有在立法中具体规定,但在改革的实施阶段引入。其中包括建立全州护理导航服务,管理区域准入支持计划,并确保全州药房服务对区域和偏远居民开放。其他旨在促进区域和远程访问的举措在立法中作了规定,但在实施阶段进一步充实了内容。其中包括准入标准(由首席执行官在实施过程中确定)和远程医疗(WA 政府在实施过程中发布的合法使用支持指南)。这份政策报告表明,WA 在改革的制定法律和实施阶段都采取了深思熟虑和有针对性的措施来解决偏远地区的问题。鉴于 WA 的 VAD 仍处于运作的早期阶段,要确定这些举措在促进 WA 偏远地区获得 VAD 方面的效果还为时过早。对这些举措进行仔细评估将至关重要,以便监测其效果,并评估是否需要采取其他措施。反思 WA 的经验对于其他州也将是有价值的,因为这些州正在将 VAD 合法化,并制定(和调整)自己的准入举措。

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