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社区为临近生命终末期的晚期疾病患者提供的“非工作时间”医疗服务是怎样的:一项关于服务提供的系统综述。

How is community based 'out-of-hours' care provided to patients with advanced illness near the end of life: A systematic review of care provision.

机构信息

King's College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, UK.

Institute of Community Health Care, College of Nursing, National Yang Ming Chiao Tung University, Taipei.

出版信息

Palliat Med. 2023 Mar;37(3):310-328. doi: 10.1177/02692163231154760.

Abstract

BACKGROUND

Deaths in the community are increasing. However, community palliative care out-of-hours is variable. We lack detailed understanding of how care is provided out-of-hours and the associated outcomes.

AIM

To review systematically the components, outcomes and economic evaluation of community-based 'out-of-hours' care for patients near the end of life and their families.

DESIGN

Mixed method systematic narrative review. Narrative synthesis, development and application of a typology to categorise out-of-hours provision. Qualitative data were synthesised thematically and integrated at the level of interpretation and reporting.

DATA SOURCES

Systematic review searching; MEDLINE, EMBASE, PsycINFO, CINAHL from January 1990 to 1st August 2022.

RESULTS

About 64 publications from 54 studies were synthesised (from 9259 retrieved). Two main themes were identified: (1) importance of being known to a service and (2) high-quality coordination of care. A typology of out-of-hours service provision was constructed using three overarching dimensions (service times, focus of team delivering the care and type of care delivered) resulting in 15 categories of care. Only nine papers were randomised control trials or controlled cohorts reporting outcomes. Evidence on effectiveness was apparent for providing 24/7 specialist palliative care with both hands-on clinical care and advisory care. Only nine publications reported economic evaluation.

CONCLUSIONS

The typological framework allows models of out-of-hours care to be systematically defined and compared. We highlight the models of out-of-hours care which are linked with improvement of patient outcomes. There is a need for effectiveness and cost effectiveness studies which define and categorise out-of-hours care to allow thorough evaluation of services.

摘要

背景

社区死亡人数不断增加。然而,社区姑息治疗的非工作时间服务存在差异。我们缺乏对非工作时间护理如何提供以及相关结果的详细了解。

目的

系统回顾以社区为基础的临终患者及其家属“非工作时间”护理的组成部分、结果和经济评估。

设计

混合方法系统叙述性综述。叙述性综合、分类学的开发和应用,以对非工作时间服务提供进行分类。定性数据进行了主题式综合,并在解释和报告层面进行了整合。

数据来源

系统检索文献;从 1990 年 1 月至 2022 年 8 月 1 日,检索了 MEDLINE、EMBASE、PsycINFO、CINAHL。

结果

综合了来自 54 项研究的约 64 篇出版物(从检索到的 9259 篇中)。确定了两个主要主题:(1)为服务所熟知的重要性;(2)高质量的护理协调。使用涵盖服务时间、提供护理的团队重点和提供的护理类型的三个总体维度构建了非工作时间服务提供的分类学,产生了 15 种护理类别。只有 9 篇论文是报告结果的随机对照试验或对照队列。提供 24/7 专业姑息治疗的证据,包括实际临床护理和咨询护理,都明显有效。仅有 9 篇出版物报告了经济评估。

结论

分类学框架允许系统地定义和比较非工作时间护理模式。我们强调了与改善患者结局相关的非工作时间护理模式。需要进行有效性和成本效益研究,定义和分类非工作时间护理,以便对服务进行全面评估。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e131/10126468/b4821e2dbcbc/10.1177_02692163231154760-fig1.jpg

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