Bolgeo Tatiana, Ruta Federico, Gatti Denise, Gambalunga Francesca, Iacorossi Laura, Di Matteo Roberta, Cotroneo Salvatore, Boccafoschi Carmelo, Maconi Antonio
Department of Research and Innovation - Azienda Ospedaliera SS Antonio e Biagio e Cesare Arrigo, Alessandria.
General Direction, ASL BAT (Health Agency), Andria.
Arch Ital Urol Androl. 2023 Feb 22;95(1):11024. doi: 10.4081/aiua.2023.11024.
To examine caregivers' experiences and training needs after radical cystectomy with urinary diversion for the first three months following the patient's discharge.
This study applied a phenomenological design approach through open-ended interviews and descriptive analysis. Phenomenology applied to empirical research requires researchers to explore the empirical facts narrated by partici-pants. This study followed the Consolidated Criteria for Reporting Qualitative Research guidelines, a 32 - item checklist for inter-views and focus groups. The study population included caregivers of bladder cancer patients, admitted to three Italian hospitals. Data were collected between March 2020 and March 2022.
Fifty-two caregivers of patients who underwent cystecto-my with urinary diversion from three Italian hospitals (41 males and 11 females) participated to the study. The data analysis con-verged in the identification of three themes - with sub-themes -that included various aspects of the caregiver's lived experiences: 1) living with the burden of being indispensable, for the family member, 2) feeling abandoned by institutions, 3) tiredness and less willingness to look after the relative due to work burden.
Our study demonstrates that the caregiver of a patient with bladder cancer and urostomy in the first three months of hospital discharge is very worried and stressed. Despite the training program received in hospital, the caregiver does not recognize the newly acquired skills and has difficulty applying them. Further study would be required.
研究患者出院后头三个月内，膀胱全切尿流改道术后照顾者的经历及培训需求。
本研究采用现象学设计方法，通过开放式访谈和描述性分析进行。现象学应用于实证研究要求研究者探索参与者叙述的实证事实。本研究遵循《定性研究报告的统一标准》指南，这是一份用于访谈和焦点小组的32项清单。研究对象包括入住三家意大利医院的膀胱癌患者的照顾者。数据收集时间为2020年3月至2022年3月。
来自三家意大利医院的52名接受膀胱全切尿流改道手术患者的照顾者（41名男性和11名女性）参与了本研究。数据分析得出了三个主题及子主题，涵盖了照顾者生活经历的各个方面：1）因对家庭成员不可或缺而负担沉重地生活；2）感觉被机构抛弃；3）由于工作负担而疲惫不堪，照顾亲属的意愿降低。
我们的研究表明，膀胱癌和尿流改道患者出院后头三个月的照顾者非常担忧和压力大。尽管在医院接受了培训项目，但照顾者并未认可新获得的技能，且难以应用这些技能。需要进一步研究。
