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Patient and public involvement within epidemiological studies of long COVID in the UK.

作者信息

Routen Ash, O'Mahoney Lauren, Aiyegbusi Olalekan Lee, Alder Yvonne, Banerjee Amitava, Buckland Lewis, Brightling Chris, Calvert Melanie, Camaradou Jenny, Chaturvedi Nishi, Chong Amy, Dalrymple Emma, Eggo Rosalind M, Elliott Paul, Evans Rachael A, Gibson Andy, Haroon Shamil, Herrett Emily, Houchen-Wolloff Linzy, Hughes Sarah E, Jeyes Flic, Matthews Karen, McMullan Christel, Morley Jessica, Shafran Roz, Smith Nikki, Stanton David, Stephenson Terence, Sterne Jonathan, Turner Grace M, Ward Helen, Khunti Kamlesh

机构信息

Diabetes Research Centre, Leicester General Hospital, University of Leicester, Leicester, UK.

Institute of Applied Health Research, University of Birmingham, Birmingham, UK.

出版信息

Nat Med. 2023 Apr;29(4):771-773. doi: 10.1038/s41591-023-02251-5.

DOI:10.1038/s41591-023-02251-5
PMID:
36932242
Abstract
摘要

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Patient and public involvement within epidemiological studies of long COVID in the UK.英国长期新冠病毒感染流行病学研究中的患者及公众参与
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The growing burden of long COVID in the United Kingdom: Insights from the UK Coronavirus Infection Survey.英国长期新冠的负担日益加重:来自英国冠状病毒感染调查的见解
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Unpacking "long COVID".剖析“长期新冠”
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Healthcare workers must be included in long covid research in the UK.英国的长期新冠研究必须纳入医护人员。
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Understanding and tracking the impact of long COVID in the United Kingdom.了解并追踪英国长期新冠的影响。
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We can do better for young people with long covid.我们可以为患有长期新冠的年轻人做得更好。
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Cross-sectional study evaluating the impact of SARS-CoV-2 variants on Long COVID outcomes in UK hospital survivors.横断面研究评估 SARS-CoV-2 变体对英国医院幸存者长新冠结局的影响。
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Failure to prescribe: UK workers with occupational long covid-19 have been ignored.不开具处方:患有职业性长期新冠后遗症的英国工人被忽视了。
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Socioeconomic inequalities of Long COVID: a retrospective population-based cohort study in the United Kingdom.长新冠的社会经济不平等:英国基于人群的回顾性队列研究。
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引用本文的文献

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Through Their Eyes: Using Photovoice to Capture the Capacity-Building Journey of Long Covid Patient Experts.透过他们的眼睛:运用影像叙事捕捉新冠长期症状患者专家的能力建设之旅。
Health Expect. 2024 Dec;27(6):e70094. doi: 10.1111/hex.70094.
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Implementation of patient and public involvement and engagement (PPIE) for the therapies for long COVID in non-hospitalised individuals (TLC) project.针对非住院个体长期新冠病毒感染治疗(TLC)项目实施患者及公众参与和介入(PPIE)。
Res Involv Engagem. 2024 Nov 9;10(1):120. doi: 10.1186/s40900-024-00654-3.
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Clinical coding of long COVID in primary care 2020-2023 in a cohort of 19 million adults: an OpenSAFELY analysis.

本文引用的文献

1
Lots of long COVID treatment leads, but few are proven.治疗长期新冠有很多线索,但经证实的却很少。
Proc Natl Acad Sci U S A. 2022 Sep 6;119(36):e2213524119. doi: 10.1073/pnas.2213524119. Epub 2022 Sep 1.
2
Development and validation of the symptom burden questionnaire for long covid (SBQ-LC): Rasch analysis.长新冠症状负担问卷(SBQ-LC)的编制与验证:Rasch 分析。
BMJ. 2022 Apr 27;377:e070230. doi: 10.1136/bmj-2022-070230.
3
Therapies for Long COVID in non-hospitalised individuals: from symptoms, patient-reported outcomes and immunology to targeted therapies (The TLC Study).
2020 - 2023年1900万成年人队列中初级保健中长新冠的临床编码:一项OpenSAFELY分析
EClinicalMedicine. 2024 May 17;72:102638. doi: 10.1016/j.eclinm.2024.102638. eCollection 2024 Jun.
4
Data Resource Profile: the Children and Young People with Long COVID (CLoCk) Study.数据资源简介:儿童和青少年长期新冠(CLoCk)研究
Int J Epidemiol. 2024 Feb 1;53(1). doi: 10.1093/ije/dyad158.
非住院患者的长新冠治疗:从症状、患者报告结局和免疫学,到靶向治疗(TLC 研究)。
BMJ Open. 2022 Apr 26;12(4):e060413. doi: 10.1136/bmjopen-2021-060413.
4
Joint patient and clinician priority setting to identify 10 key research questions regarding the long-term sequelae of COVID-19.共同设定患者和临床医生的优先级,以确定关于 COVID-19 长期后遗症的 10 个关键研究问题。
Thorax. 2022 Jul;77(7):717-720. doi: 10.1136/thoraxjnl-2021-218582. Epub 2022 Mar 30.
5
Understanding and tracking the impact of long COVID in the United Kingdom.了解并追踪英国长期新冠的影响。
Nat Med. 2022 Jan;28(1):11-15. doi: 10.1038/s41591-021-01591-4.