Pediatric Nursing Department, Faculty of Nursing, Ain Shams University, Cairo, Egypt.
Medical Genetics Department, Faculty of Medicine, Ain Shams University, Cairo, Egypt.
J Med Life. 2023 Feb;16(2):215-219. doi: 10.25122/jml-2022-0258.
The objective of this study was to evaluate the effect of a self-learning package on mothers' knowledge and practices towards caring for their children with phenylketonuria. A pre/post quasi-experimental study was conducted, including 128 mothers of children diagnosed with phenylketonuria. A specifically designed and validated questionnaire was used to evaluate mothers' knowledge and reported practices toward their children before and after participating in the educational program. There was a highly positive association between knowledge and reported practice (.674 and .398). The self-learning package had a positive impact on mothers' knowledge and practices. Consequently, educational programs should be provided to all mothers of newly diagnosed cases to improve their children's adherence to the therapeutic regimen.
本研究旨在评估自学包对母亲照顾患有苯丙酮尿症儿童的知识和实践的影响。进行了一项预/后准实验研究，包括 128 名患有苯丙酮尿症儿童的母亲。使用专门设计和验证的问卷在参加教育计划前后评估母亲对其子女的知识和报告实践。知识和报告实践之间存在高度正相关（.674 和.398）。自学包对母亲的知识和实践产生了积极影响。因此，应向所有新诊断病例的母亲提供教育计划，以提高他们对治疗方案的依从性。
