Department of Health Data Science, University of Liverpool, Liverpool, UK.
Department of Health Data Science, University of Liverpool, Liverpool, UK.
J Clin Epidemiol. 2023 Jun;158:34-43. doi: 10.1016/j.jclinepi.2023.03.011. Epub 2023 Mar 21.
Core outcome sets (COS) represent the minimum health outcomes to be measured for a given health condition. Interest is growing in using COS within routine care to support delivery of patient-focused care. This review aims to systematically map COS developed for routine care to understand their scope, stakeholder involvement, and development methods.
Medline (Ovid), Scopus, and Web of Science Core collection were searched for studies reporting development of COS for routine care. Data on scope, methods, and stakeholder groups were analyzed in subgroups defined by setting.
Screening 25,301 records identified 262 COS: 164 for routine care only and 98 for routine care and research. Nearly half of the COS (112/254, 44%) were developed with patients, alongside input from experts in registries, insurance, legal, outcomes measurement, and performance management. Research publications were often searched to generate an initial list of outcomes (115/198, 58%) with few searching routine health records (47/198, 24%).
An increasing number of COS is being developed for routine care. Although involvement of patient stakeholders has increased in recent years, further improvements are needed. Methodology and scope are broadly similar to COS for research but implementation of the final set is a greater consideration during development.
核心结局集（COS）代表了给定健康状况下需要测量的最低健康结果。人们越来越感兴趣的是在常规护理中使用 COS，以支持提供以患者为中心的护理。本综述旨在系统地绘制常规护理中开发的 COS 图谱，以了解其范围、利益相关者的参与情况和开发方法。
在 Medline（Ovid）、Scopus 和 Web of Science 核心合集数据库中检索了报道常规护理 COS 开发的研究。根据设置，对范围、方法和利益相关者群体的数据进行了亚组分析。
筛选 25,301 条记录后确定了 262 个 COS：仅用于常规护理的 164 个，以及用于常规护理和研究的 98 个。近一半的 COS（112/254，44%）是与患者一起，以及与来自登记处、保险、法律、结果测量和绩效管理方面的专家共同开发的。研究出版物经常被搜索以生成初始结果列表（115/198，58%），而很少有搜索常规健康记录（47/198，24%）的。
越来越多的 COS 正在为常规护理开发。尽管近年来患者利益相关者的参与有所增加，但仍需要进一步改进。方法和范围与研究中的 COS 大致相似，但在开发过程中更需要考虑最终集的实施。
