Bascom Palmer Eye Institute, University of Miami Miller School of Medicine, Miami, FL, USA.
Population, Policy and Practice Research and Teaching Department, GOS Institute of Child Health, University College London, London, UK.
Eye (Lond). 2023 Oct;37(15):3157-3173. doi: 10.1038/s41433-023-02492-1. Epub 2023 Mar 22.
We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.
我们对儿童青光眼患者及其照顾者的社会心理功能(PF)和生活质量(QoL)研究进行了全面的文献综述。我们的研究结果表明,研究质量和方法存在差异,并且青光眼特定因素和社会人口统计学变量与测量的 PF 和 QoL 之间的关联结果也不一致。未来的研究应集中于开发文化意识和标准化的评估工具,进行具有全球代表性的多中心纵向研究,评估兄弟姐妹和儿童青光眼提供者中的 PF 和 QoL,以及实施干预措施以改善患者和照顾者的 PF 和 QoL。