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利益相关者对移植指标的看法:2022 年移植受者科学注册处共识会议。

Stakeholders' perspectives on transplant metrics: the 2022 Scientific Registry of Transplant Recipients' consensus conference.

机构信息

Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA; Department of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA.

Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA.

出版信息

Am J Transplant. 2023 Jul;23(7):875-890. doi: 10.1016/j.ajt.2023.03.012. Epub 2023 Mar 21.

Abstract

In July 2022, the Scientific Registry of Transplant Recipients (SRTR) hosted an innovative, multistakeholder consensus conference to identify information and metrics desired by stakeholders in the transplantation system, including patients, living donors, caregivers, deceased donor family members, transplant professionals, organ procurement organization professionals, payers, and regulators. Crucially, patients, caregivers, living donors, and deceased donor family members were included in all aspects of this conference, including serving on the planning committee, participating in preconference focus groups and learning sessions, speaking at the conference, moderating conference sessions and breakout groups, and shaping the conclusions. Patients constituted 24% of the meeting participants. In this report, we document the proceedings and enumerate 160 recommendations, 10 of which have been highly prioritized. SRTR will use the recommendations to develop new presentations of information and metrics requested by stakeholders to support informed decision-making.

摘要

2022 年 7 月,移植受者科学登记处(SRTR)举办了一场创新的、多利益相关者共识会议,以确定移植系统中的利益相关者(包括患者、活体捐献者、护理人员、已故捐献者家属、移植专业人员、器官获取组织专业人员、支付方和监管机构)所希望的信息和指标。至关重要的是,患者、护理人员、活体捐献者和已故捐献者家属参与了会议的所有方面,包括担任规划委员会成员、参加会前重点小组和学习会议、在会议上发言、主持会议和分组讨论,以及形成结论。患者占会议参与者的 24%。在本报告中,我们记录了会议的过程,并列举了 160 条建议,其中 10 条被高度优先考虑。SRTR 将利用这些建议来开发新的信息和利益相关者要求的指标呈现方式,以支持知情决策。

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