Signore Caroline, Davis Maurice, Tingen Candace M, Cernich Alison N
Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, Maryland, USA.
J Womens Health (Larchmt). 2021 Feb;30(2):147-153. doi: 10.1089/jwh.2020.8864. Epub 2020 Nov 19.
It is estimated that 1 in 4 women in the United States live with a disability, and using population-based estimates, 10-12% of women of childbearing age have a disability. There are limited data to suggest that women with disabilities experience higher rates of or risks for adverse outcomes related to pregnancy, delivery, and access to appropriate postpartum care. Research on specific disabling conditions demonstrates variable risk for syndromes that threaten the health of the mother, such as preeclampsia, infection, and coagulation disorders. Much of the literature suggests that normal, healthy pregnancy is possible but points to the need for tailored information for patients and providers about the intersection of their condition with pregnancy and specific care needs. Given the lack of systematic evidence in this area across conditions and functional impairments, more research is needed to clarify the interaction of specific disabilities with pregnancy and provide evidence-based information to the field to decrease the risks to mothers and their infants. This article will provide an overview of conditions that contribute to maternal morbidity and mortality as they relate to pregnancy in women with disabilities and provide resources to the field to further the investigation of this area.
据估计，美国四分之一的女性患有残疾，根据基于人口的估计，10%至12%的育龄女性患有残疾。现有数据有限，表明残疾女性在妊娠、分娩及获得适当产后护理方面出现不良后果的几率或风险更高。针对特定致残状况的研究表明，先兆子痫、感染和凝血障碍等威胁母亲健康的综合征存在不同程度的风险。许多文献表明，残疾女性有可能实现正常、健康的妊娠，但指出需要为患者和医疗服务提供者提供量身定制的信息，说明她们的病情与妊娠的关联以及具体护理需求。鉴于该领域缺乏针对各种状况和功能障碍的系统性证据，需要开展更多研究，以阐明特定残疾与妊娠之间的相互作用，并为该领域提供循证信息，降低对母亲及其婴儿的风险。本文将概述与残疾女性妊娠相关的导致孕产妇发病和死亡的状况，并为该领域提供资源，以进一步深入研究这一领域。
