Wiborg Majken H, Laursen Birgitte S, Kallestrup Else B, Krøijer Rasmus, Lund Lars
Department of Urology, Hospital of South West Jutland, University Hospital of Southern Denmark, Esbjerg, Denmark.
Clinical Institute, University of Southern Denmark, Odense, Denmark.
Sex Med. 2023 Mar 22;11(2):qfac022. doi: 10.1093/sexmed/qfac022. eCollection 2023 Apr.
Peyronie's disease has an impact on men's mental and physical health.
We sought to translate the Peyronie's Disease Questionnaire into Danish, adapt it to the Danish cultural setting, and test it in a Danish population.
Translation of the Peyronie's Disease Questionnaire was performed according to the guidelines for adapting health status measures for use in languages other than the source language by Beaton et al. The validated American Peyronie's Disease Questionnaire was developed to monitor patient symptoms after an intervention and to inspire a subsequent dialogue about physical and psychological symptoms with a healthcare provider, thereby allowing the patient and the healthcare professional to choose the best treatment. The expert committee agreed on a Danish version after cross-cultural adaptation. The Danish Peyronie's Disease Questionnaire was sent by electronic mail to a preselected group of 41 men with Peyronie's disease.
After completing the questionnaire, 32 men participated in a video interview regarding the questionnaire and were asked to identify any problematic fields or areas open to misunderstanding.
The Peyronie's Disease Questionnaire underwent major modifications in light of the comments of the first 10 respondents. Thereafter, only minor changes were made until data saturation was reached after 27 of the 32 respondents had been interviewed. In 87% of respondents Peyronie's disease bothered from the last time they had intercourse, and 93% of the men experienced being bothered by having intercourse less often. Peyronie's disease made 73% of respondents feel bodily discomfort, and 88% had intercourse less often than they used to have due to Peyronie's disease.
The Peyronie's Disease Questionnaire is a valuable tool in the crucial task of addressing Peyronie's disease, providing insight into the mental and sexual health problems as well as physical challenges faced by patients.
The interviewer's modest experience in conducting interviews is believed to have been duly compensated for by continuous and accumulating learning-while-doing process because the same interviewer conducted all of the interviews and did so consecutively.
Danish men expressed satisfaction with the questionnaire and found it valuable as a tool when visiting the doctor for the first time.
佩罗尼氏病会对男性的身心健康产生影响。
我们试图将佩罗尼氏病问卷翻译成丹麦语，使其适应丹麦的文化背景，并在丹麦人群中进行测试。
根据比顿等人提出的针对非源语言健康状况测量工具改编的指南，对佩罗尼氏病问卷进行翻译。经过验证的美国佩罗尼氏病问卷旨在监测干预后患者的症状，并引发后续与医疗服务提供者关于身体和心理症状的对话，从而使患者和医疗专业人员能够选择最佳治疗方案。经过跨文化改编后，专家委员会确定了丹麦语版本。丹麦语版佩罗尼氏病问卷通过电子邮件发送给预先选定的41名患有佩罗尼氏病的男性。
在完成问卷后，32名男性参与了关于该问卷的视频访谈，并被要求指出任何有问题的领域或可能产生误解的地方。
根据前10名受访者的意见，佩罗尼氏病问卷进行了重大修改。此后，仅进行了微小改动，直到32名受访者中的27人接受访谈后达到数据饱和。87%的受访者表示自上次性交以来佩罗尼氏病一直困扰着他们，93%的男性因性交频率降低而感到困扰。73%的受访者因佩罗尼氏病感到身体不适，88%的人因该病性交频率比以前降低。
佩罗尼氏病问卷是解决佩罗尼氏病这项关键任务中的宝贵工具，能深入了解患者面临的心理、性健康问题以及身体挑战。
由于所有访谈均由同一名访谈者连续进行，在边做边学的持续积累过程中，访谈者在访谈方面有限的经验被认为得到了充分弥补。
丹麦男性对该问卷表示满意，并认为在首次就医时它是一种很有价值的工具。
