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制定特应性皮炎的综合护理路径——挑战与未满足的需求。

Developing integrated care pathways for atopic dermatitis-Challenges and unmet needs.

作者信息

Zuberbier Torsten, Beck Lisa A, Bedbrook Anna, de Bruin-Weller Marjolein, Bousquet Jean, Cork Michael, Douladiris Nikolaos, Katoh Norito, Mortz Charlotte G, Werfel Thomas, Wojciech Francuzik, Wollenberg Andreas, Siemens Kristina, Stevanovic Katarina, Worm Margitta

机构信息

Institute of Allergology, Charité-Universitätsmedizin Berlin, Berlin, Germany.

Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

出版信息

Clin Transl Allergy. 2023 Mar;13(3):e12236. doi: 10.1002/clt2.12236.

DOI:10.1002/clt2.12236
PMID:36973955
原文链接:
https://pmc.ncbi.nlm.nih.gov/articles/PMC10040953/
Abstract

BACKGROUND

GA LEN-ADCARE is a branch of the largest multidisciplinary network of research centres and clinical care in allergy and asthma, GA LEN, focussing on the field of atopic dermatitis (AD). AD is a chronic inflammatory skin disease with high burden and many comorbidities requiring different levels of treatment. The need for aligned information from all involved healthcare providers led to the discussion of an integrated care pathway (ICP) plan for AD patient care involving all stakeholders and considering the complexity and variability of the disease, with a particular focus placed on the large number of patients with milder forms of AD.

METHODS

The GA LEN ADCARE network and all stakeholders, abbreviated the AD-ICPs working group, were involved in the discussion and preparation of the AD-ICPs during a series of subgroup workshops and meetings in years 2020 and 2021.

RESULTS

Here we discuss the unmet needs in AD, the methodology for devising an AD-ICP and the ICP action plan.

CONCLUSION

The GA LEN ADCARE network has outlined the unmet needs in AD and provided an action plan for devising AD-ICPs, considering the complexity and variability of the disease.

摘要

背景

GA LEN-ADCARE是过敏与哮喘领域最大的多学科研究中心和临床护理网络GA LEN的一个分支,专注于特应性皮炎(AD)领域。AD是一种慢性炎症性皮肤病,负担沉重且有许多合并症,需要不同程度的治疗。所有参与的医疗保健提供者都需要统一的信息,这引发了关于为AD患者护理制定综合护理路径(ICP)计划的讨论,该计划涉及所有利益相关者,并考虑到疾病的复杂性和变异性,特别关注大量症状较轻的AD患者。

方法

GA LEN ADCARE网络和所有利益相关者,简称为AD-ICPs工作组,在2020年和2021年的一系列分组研讨会和会议中参与了AD-ICPs的讨论和制定。

结果

在此,我们讨论AD中未满足的需求、设计AD-ICP的方法以及ICP行动计划。

结论

GA LEN ADCARE网络概述了AD中未满足的需求,并提供了一个考虑到疾病复杂性和变异性的设计AD-ICPs的行动计划。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1177/10040953/1844b71bfe1d/CLT2-13-e12236-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1177/10040953/cc81b908800e/CLT2-13-e12236-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1177/10040953/1844b71bfe1d/CLT2-13-e12236-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1177/10040953/cc81b908800e/CLT2-13-e12236-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1177/10040953/1844b71bfe1d/CLT2-13-e12236-g002.jpg

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本文引用的文献

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J Eur Acad Dermatol Venereol. 2022 Nov;36(11):1904-1926. doi: 10.1111/jdv.18429. Epub 2022 Sep 3.
2
European guideline (EuroGuiDerm) on atopic eczema: part I - systemic therapy.欧洲特应性皮炎指南(EuroGuiDerm):第一部分——系统治疗。
J Eur Acad Dermatol Venereol. 2022 Sep;36(9):1409-1431. doi: 10.1111/jdv.18345.
3
ETFAD/EADV Eczema task force 2020 position paper on diagnosis and treatment of atopic dermatitis in adults and children.
多学科方法对特应性皮炎有益。
Dermatol Ther (Heidelb). 2024 Jun;14(6):1443-1455. doi: 10.1007/s13555-024-01185-1. Epub 2024 May 30.
4
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欧洲皮肤病与性病学会/欧洲变态反应与临床免疫学会湿疹工作组2020年关于成人和儿童特应性皮炎诊断与治疗的立场文件。
J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2717-2744. doi: 10.1111/jdv.16892. Epub 2020 Nov 17.
4
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5
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J Eur Acad Dermatol Venereol. 2020 Mar;34(3):e136-e138. doi: 10.1111/jdv.16092. Epub 2019 Dec 5.
6
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7
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