Pruner Misty, Jirikowic Tracy, Baylor Carolyn, Astley Hemingway Susan
Center on Human Development and Disability, University of Washington, Seattle, WA 98195, USA.
Department of Rehabilitation Medicine, University of Washington, Seattle, WA 98195, USA.
Children (Basel). 2023 Mar 13;10(3):544. doi: 10.3390/children10030544.
Caregiver-reported assessments provide opportunities for caregivers to share concerns and identify the strengths of their infant/toddler regarding prenatal alcohol exposure (PAE). These insights may reveal under-recognized concerns and inform a strengths-based approach to early intervention. The purpose of this study was to describe the type and frequency of caregiver-reported concerns and strengths in a sample of infants/toddlers at the time of their fetal alcohol spectrum disorder (FASD) diagnostic evaluation. Caregivers' concerns and strengths were identified in the context of two parent-report questionnaires, the Infant Toddler Sensory Profile and Child Behavior Checklist/1½-5. By using content analysis, caregivers' open-ended responses were identified, coded, and analyzed. The frequencies of all the coded concerns and strengths were counted. The data were compared across the two age groups (<2 years and ≥2 years) and caregiver status. Caregivers ( = 117) identified numerous concerns and strengths across multiple categories. The most frequently reported concerns were related to aggressive behavior, language/communication, and sensory processing. The most frequently reported strengths were related to happiness, sociability, and love. The type of concerns and strengths reported were relatively consistent across age and caregiver status. These findings reinforce the value of caregivers' perspectives and offer a reminder to practitioners that infants/toddlers with PAE and their caregivers have many strengths that can be harnessed, in addition to a range of challenges that must be addressed.
照顾者报告的评估为照顾者提供了分享担忧并确定其婴幼儿在产前酒精暴露（PAE）方面优势的机会。这些见解可能揭示未被充分认识的担忧，并为基于优势的早期干预方法提供信息。本研究的目的是描述在胎儿酒精谱系障碍（FASD）诊断评估时，照顾者报告的婴幼儿担忧和优势的类型及频率。照顾者的担忧和优势是在两份家长报告问卷《婴幼儿感觉概况》和《儿童行为检查表/1.5 - 5岁》的背景下确定的。通过内容分析，对照顾者的开放式回答进行识别、编码和分析。统计所有编码的担忧和优势的频率。对两个年龄组（<2岁和≥2岁）以及照顾者状况的数据进行比较。照顾者（n = 117）在多个类别中识别出了许多担忧和优势。最常报告的担忧与攻击性行为、语言/沟通和感觉处理有关。最常报告的优势与快乐、社交能力和爱有关。报告的担忧和优势类型在年龄和照顾者状况方面相对一致。这些发现强化了照顾者观点的价值，并提醒从业者，有PAE的婴幼儿及其照顾者除了有一系列必须解决的挑战外，还有许多可以利用的优势。
