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平衡胎儿酒精谱系障碍的故事:对优势文献的叙述性综述。

Balancing the story of fetal alcohol spectrum disorder: A narrative review of the literature on strengths.

机构信息

Canada FASD Research Network, Vancouver, British Columbia, Canada.

Department of Psychology, University of Guelph, Guelph, Ontario, Canada.

出版信息

Alcohol Clin Exp Res. 2021 Dec;45(12):2448-2464. doi: 10.1111/acer.14733. Epub 2021 Nov 16.

Abstract

For many years, researchers have explored the complex challenges experienced by individuals with fetal alcohol spectrum disorder (FASD). This research has been important for documenting the brain- and body-based impacts of prenatal alcohol exposure and the psychosocial vulnerabilities and environmental adversities frequently associated with FASD. It has also supported advocacy efforts and highlighted the necessity of providing FASD services and supports. However, with the focus on deficits and needs, there is a considerable gap in the literature on the strengths and successes of individuals with FASD. The lack of strengths-based FASD research has likely perpetuated the stress and stigma experienced by individuals with FASD and their families. Thus, there is a critical need to shift the direction of the field. Here we provide a narrative review of the literature on strengths in FASD. Our goals are to: (1) understand the state of strengths-based research related to individuals with FASD across the lifespan, and (2) describe positive characteristics, talents, and abilities of individuals with FASD that may be cultivated to promote their fulfillment and well-being. We identified a total of 19 studies, most of which were conducted to explore the lived experiences of adults with FASD. This preliminary but critical body of evidence highlights the intrinsic strengths of individuals with FASD, including strong self-awareness, receptiveness to support, capacity for human connection, perseverance through challenges, and hope for the future. Despite the importance of this emerging evidence, appraisal of the literature indicates a need for more intentional, methodologically rigorous, participatory, and theory-driven research in this area. Findings from this study, including the identified gaps in the literature, can be used to inform research, practice, and policy to meaningfully advance the field of FASD and promote positive outcomes in this population.

摘要

多年来,研究人员一直在探索患有胎儿酒精谱系障碍(FASD)的个体所面临的复杂挑战。这项研究对于记录产前酒精暴露对大脑和身体的影响,以及与 FASD 经常相关的心理社会脆弱性和环境逆境非常重要。它还支持了宣传工作,并强调了提供 FASD 服务和支持的必要性。然而,由于关注缺陷和需求,FASD 个体的优势和成功方面的文献存在相当大的差距。缺乏基于优势的 FASD 研究可能加剧了 FASD 个体及其家庭所经历的压力和耻辱感。因此,迫切需要改变该领域的方向。在这里,我们提供了一篇关于 FASD 优势的文献综述。我们的目标是:(1)了解与 FASD 个体在整个生命周期相关的基于优势的研究现状,以及(2)描述 FASD 个体可能被培养以促进其实现和幸福的积极特征、才能和能力。我们共确定了 19 项研究,其中大多数研究旨在探讨 FASD 成人的生活经历。这一初步但关键的证据体强调了 FASD 个体的内在优势,包括强烈的自我意识、对支持的接受能力、与人建立联系的能力、克服挑战的毅力和对未来的希望。尽管这一新兴证据很重要,但对文献的评估表明,在这一领域需要进行更有目的、方法上严格、参与性和理论驱动的研究。这项研究的结果,包括文献中的差距,可以用于为研究、实践和政策提供信息,以有意义地推进 FASD 领域的发展,并促进这一人群的积极结果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5a21/9299043/6dd6a3a9a3d1/ACER-45-2448-g002.jpg

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