Veneziano Joseph, Shea Shannon
NuPath, Inc., Woburn, MA USA.
Endicott College, Beverly, MA USA.
Behav Anal Pract. 2022 Apr 6;16(1):127-144. doi: 10.1007/s40617-022-00690-z. eCollection 2023 Mar.
The field of applied behavior analysis (ABA) has produced powerful changes and improvements to the lives of many. However, the field is not immune from criticism. One criticism from those outside the field is that the goal of ABA therapy is to make Autistic people appear "indistinguishable" from their peers. This paper examines "indistinguishability" and its implications by defining "indistinguishable" in behavior analytic terms, exploring how the term was used in two notable studies in the field (Lovaas, 1987, [1], 3-9; Rekers & Lovaas, 1974, [2], 173-190), and providing a review of the social validity and ethical implications of having "indistinguishability" as an explicit or implied goal. This is partially accomplished by incorporating concerns from the Autistic self-advocate community. We argue that the Autistic self-advocate community's concerns surrounding "indistinguishability" as a goal have a degree of legitimacy and need to be given due consideration. Suggestions for addressing these concerns in ABA degree programs and research are discussed, emphasizing the importance of considering stakeholder values, taking criticisms seriously, and making changes when necessary.
应用行为分析(ABA)领域给许多人的生活带来了巨大的改变和改善。然而,该领域也并非不受批评。来自该领域之外的一种批评是,ABA疗法的目标是让自闭症患者在行为表现上与同龄人“难以区分”。本文通过从行为分析的角度定义“难以区分”,探讨该术语在该领域两项著名研究(洛瓦斯,1987年,[1],3 - 9;雷克斯与洛瓦斯,1974年,[2],173 - 190)中的使用方式,并对将“难以区分”作为明确或隐含目标的社会效度和伦理意义进行综述,来审视“难以区分”及其影响。这部分是通过纳入自闭症自我倡导群体的关切来实现的。我们认为,自闭症自我倡导群体围绕将“难以区分”作为目标的关切具有一定的合理性,需要得到应有的考虑。文中讨论了在ABA学位课程和研究中解决这些关切的建议,强调了考虑利益相关者价值观、认真对待批评并在必要时做出改变的重要性。