Kassam-Adams Nancy, Butler Lucas, Price Julia, Gawel Marcie, Graham Leila, Myers Sage, Auerbach Marc
Children's Hospital of Philadelphia, 3401 Civic Center Blvd, Philadelphia, PA 19104, USA.
University of Pennsylvania Perelman School of Medicine, 3400 Civic Center Blvd, Philadelphia, PA 19104, USA.
Resusc Plus. 2023 Mar 21;14:100374. doi: 10.1016/j.resplu.2023.100374. eCollection 2023 Jun.
For paediatric patients and families, resuscitation can be an extremely stressful experience with significant medical and psychological consequences. Psychological sequelae may be reduced when healthcare teams apply patient- and family-centered care and trauma-informed care, yet there are few specific instructions for effective family-centered or trauma-informed behaviours that are observable and teachable. We aimed to develop a framework and tools to address this gap.
We reviewed relevant policy statements, guidelines, and research to define core domains of family-centered and trauma-informed care, and identified observable evidence-based practices in each domain. We refined this list of practices via review of provider/team behaviours in simulated paediatric resuscitation scenarios, then developed and piloted an observational checklist.
Six domains were identified: (1) Sharing information with patient and family; (2) Promoting family involvement in care and decisions; (3) Addressing family needs and distress; (4) Addressing child distress; (5) Promoting effective emotional support for child; (6) Practicing developmental and cultural competence. A 71-item observational checklist assessing these domains was feasible for use during video review of paediatric resuscitation.
This framework can guide future research and provide tools for training and implementation efforts to improve patient outcomes through patient- and family-centered and trauma-informed care.
对于儿科患者及其家庭而言,复苏可能是一段极具压力的经历,会产生重大的医学和心理后果。当医疗团队采用以患者和家庭为中心的护理以及创伤知情护理时,心理后遗症可能会减少,但对于可观察且可传授的有效家庭中心或创伤知情行为,几乎没有具体的指导说明。我们旨在制定一个框架和工具来填补这一空白。
我们回顾了相关政策声明、指南和研究,以界定以家庭为中心和创伤知情护理的核心领域,并确定每个领域中基于证据的可观察实践。我们通过回顾模拟儿科复苏场景中提供者/团队的行为,对这份实践清单进行了完善,然后制定并试行一份观察清单。
确定了六个领域:(1)与患者和家庭分享信息;(2)促进家庭参与护理和决策;(3)满足家庭需求并缓解其痛苦;(4)缓解儿童痛苦;(5)为儿童提供有效的情感支持;(6)具备发展和文化能力。一份评估这些领域的71项观察清单在儿科复苏视频审查期间使用是可行的。
该框架可指导未来的研究,并为培训和实施工作提供工具,以通过以患者和家庭为中心以及创伤知情护理来改善患者预后。