NIHR Policy Research Unit for Health and Social Care Workforce, King's College London, London, England.
NIHR Applied Research Collaboration South London, England, UK.
Aging Ment Health. 2023 Sep-Oct;27(10):1946-1955. doi: 10.1080/13607863.2023.2196254. Epub 2023 Apr 3.
Residential respite (RR) provides a valuable break for family carers, but little known about its offer, take-up or experiences of carers of people living with dementia. This paper aims to further understandings of factors influencing RR use.
RR stakeholder workshop and qualitative interviews.
Stakeholder or living in the community in own home.
RR stakeholders (13); family carers with experience of RR, or had declined it, or were planning to use it for the first time ( = 36).
Stakeholders participated in a workshop to discuss provision, models and funding of RR. Family carer interviews focused on expectations, experiences and outcomes of use of RR. Data were analysed thematically and mapped against Andersen's model of health service use.
Identifying need for RR does not necessarily transpire into use. Planning and ease of booking were crucial for carers, but many felt there was little support with this. Systemic factors concerning funding, planning and booking RR act as barriers to its use.
Findings highlight how systemic factors influence RR use. Discussing respite need in routine care planning or reviews may support carers and people living with dementia to consider RR, but system changes are needed to address barriers.
家庭喘息服务为照顾者提供了宝贵的休息机会，但对于痴呆症患者照顾者对其的了解甚少，包括服务提供、接受和体验等方面。本研究旨在进一步了解影响家庭喘息服务使用的因素。
家庭喘息服务利益相关者研讨会和定性访谈。
利益相关者或居住在社区自己家中。
家庭喘息服务利益相关者（13 名）；有家庭喘息服务使用经验（使用过、拒绝过或计划首次使用）的照顾者（ = 36 名）。
利益相关者参加了一个研讨会，讨论家庭喘息服务的提供、模式和资金问题。照顾者的访谈重点是使用家庭喘息服务的期望、经验和结果。使用主题分析方法对数据进行分析，并与安德森卫生服务使用模型相对应。
确定对家庭喘息服务的需求并不一定意味着会使用。规划和预订的便利性对照顾者至关重要，但许多人认为在这方面几乎没有得到支持。与资金、规划和预订家庭喘息服务相关的系统性因素是其使用的障碍。
研究结果强调了系统性因素如何影响家庭喘息服务的使用。在常规护理计划或评估中讨论喘息需求可能有助于照顾者和痴呆症患者考虑使用家庭喘息服务，但需要进行系统变革以解决障碍。
