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痴呆症患者照料者使用喘息干预措施的障碍与促进因素:一项综合综述

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review.

作者信息

Leocadie Marie-Conception, Roy Marie-Hélène, Rothan-Tondeur Monique

机构信息

School of Health Sciences, HES-SO University of Applied Sciences and Arts Western Switzerland, Avenue de Champel 47, CH 1206 Geneva, Switzerland.

Mont Champagnat Residence, CIO 7141 Royal Avenue Château-Richer, Quebec, GOA 1N0 Canada.

出版信息

Arch Public Health. 2018 Nov 22;76:72. doi: 10.1186/s13690-018-0316-y. eCollection 2018.

DOI:10.1186/s13690-018-0316-y
PMID:30479766
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6249779/
Abstract

BACKGROUND

Due to the increase in the number of people with dementia, relatives often provide in-home care. This care constitutes a cornerstone of the healthcare system, and maintaining these caregivers' well-being is therefore of paramount importance. Although respite interventions are generally considered an effective support system, they tend to be underutilized. The aim of this integrative literature review is to highlight the factors that promote and impede the use of respite interventions.

METHODS

Searches were conducted on the PubMed and CINAHL databases for studies of respite interventions from 1980 to 2016, and they yielded 51 articles of relevance.

RESULTS

Analysis of these articles revealed modifiable and immutable factors that influence the use of respite. The most cited topic categories in the literature were attributes of respite services and workload managed by caregivers, which is characterized by the onset of burden.

CONCLUSION

The factors promoting or impeding the use of respite interventions identified by our analysis highlight the need to adapt respite service attributes and use caregivers' skills to foster the partnership between healthcare teams and caregivers and to ensure the accompanying dyad's quality and safety.

摘要

背景

由于痴呆症患者人数的增加,亲属经常提供居家护理。这种护理是医疗保健系统的基石,因此维持这些护理人员的福祉至关重要。尽管临时护理干预措施通常被认为是一种有效的支持系统,但它们往往未得到充分利用。本综合文献综述的目的是突出促进和阻碍临时护理干预措施使用的因素。

方法

在PubMed和CINAHL数据库中检索1980年至2016年期间关于临时护理干预措施的研究,共获得51篇相关文章。

结果

对这些文章的分析揭示了影响临时护理使用的可改变和不可改变的因素。文献中最常被提及的主题类别是临时护理服务的属性以及护理人员管理的工作量,其特点是负担的产生。

结论

我们的分析确定的促进或阻碍临时护理干预措施使用的因素凸显了调整临时护理服务属性并利用护理人员技能的必要性,以促进医疗团队与护理人员之间的合作关系,并确保陪伴双方的质量和安全。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/451c61dd7b74/13690_2018_316_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/bd091d11d008/13690_2018_316_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/baf7ed285a7c/13690_2018_316_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/451c61dd7b74/13690_2018_316_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/bd091d11d008/13690_2018_316_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/baf7ed285a7c/13690_2018_316_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6cd8/6249779/451c61dd7b74/13690_2018_316_Fig3_HTML.jpg

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本文引用的文献

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Factors associated with the quality of life of family carers of people with dementia: A systematic review.与痴呆症患者的家庭照顾者生活质量相关的因素:系统评价。
Alzheimers Dement. 2017 May;13(5):572-581. doi: 10.1016/j.jalz.2016.12.010. Epub 2017 Feb 5.
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Modeling the Distress of Spousal Caregivers of People with Dementia.
WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults.
世卫组织、时间、方式:一项关于为老年人的非正式照护者提供灵活家庭喘息服务的范围综述。
BMC Health Serv Res. 2024 Jun 26;24(1):767. doi: 10.1186/s12913-024-11058-0.
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Rural-urban differences in use of health services before and after dementia diagnosis: a retrospective cohort study.城乡在痴呆症诊断前后使用卫生服务方面的差异:一项回顾性队列研究。
BMC Health Serv Res. 2024 Mar 29;24(1):399. doi: 10.1186/s12913-024-10817-3.
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Music therapy for supporting informal carers of adults with life-threatening illness pre- and post-bereavement; a mixed-methods systematic review.音乐治疗在成人临终和丧亲前后支持非专业照护者:一项混合方法系统评价。
BMC Palliat Care. 2024 Feb 27;23(1):55. doi: 10.1186/s12904-024-01364-z.
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[Need for Care in Old Age: Characterization of Informal Caregivers and the Care Situation with Regard to Care Levels in Home Care].[老年护理需求:居家护理中非正式照料者的特征及护理水平相关护理情况]
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