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本文引用的文献

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2
"I have a Ph.D. in my daughter": Mother and Child Experiences of Living with Childhood Chronic Illness.“我在女儿身上获得了博士学位”:患有慢性儿童疾病的母亲与孩子的生活经历
J Child Fam Stud. 2022 Dec 12:1-12. doi: 10.1007/s10826-022-02506-8.
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A parent first: Exploring the support needs of parents caring for a child with medical complexity in Australia.父母优先:探索澳大利亚照顾医疗复杂儿童的父母的支持需求。
J Pediatr Nurs. 2022 Nov-Dec;67:e48-e57. doi: 10.1016/j.pedn.2022.09.018. Epub 2022 Sep 30.
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Prevalence of depression and quality of life in primary caregiver of children with cerebral palsy.脑瘫患儿主要照料者的抑郁患病率及生活质量
J Family Med Prim Care. 2021 Nov;10(11):4205-4211. doi: 10.4103/jfmpc.jfmpc_70_21. Epub 2021 Nov 29.
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Care coordination for children with medical complexity in Japan: Caregivers' perspectives.日本医疗复杂儿童的护理协调:照顾者的观点。
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6
Key constituents for integration of care for children assisted with long-term home ventilation: a European study.长期家庭通气治疗儿童的整合护理关键要素:一项欧洲研究。
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Pediatr Int. 2019 Sep;61(9):865-871. doi: 10.1111/ped.13936.
8
Determinants of Health-related Quality of Life Among Mothers of Children With Cerebral Palsy.脑瘫患儿母亲健康相关生活质量的决定因素
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9
Unsung heroes, flying blind-A metasynthesis of parents' experiences of caring for children with special health-care needs at home.无名英雄,盲目飞行——父母在家照顾有特殊医疗需求的孩子的经验的元综合分析。
J Clin Nurs. 2018 Aug;27(15-16):3179-3196. doi: 10.1111/jocn.14512.
10
Physio-psychological Burdens and Social Restrictions on Parents of Children With Technology Dependency are Associated With Care Coordination by Nurses.技术依赖儿童家长的生理心理负担和社会限制与护士的护理协调有关。
J Pediatr Nurs. 2017 Sep-Oct;36:124-131. doi: 10.1016/j.pedn.2017.06.006. Epub 2017 Jun 16.

影响在家照顾有医疗需求儿童的母亲生活质量的因素:横断面问卷调查研究

Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study.

作者信息

Nakamura Kanako, Hamada Yuko, Fujita Ayaka, Morokuma Seiichi

机构信息

Fukuoka Jo Gakuin Nursing University, Koga City, Japan.

Department of Nursing, Faculty of Nursing, Shimonoseki City University, Shimonoseki, Japan.

出版信息

Asian Pac Isl Nurs J. 2024 Dec 18;8:e63946. doi: 10.2196/63946.

DOI:10.2196/63946
PMID:39693614
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11694042/
Abstract

BACKGROUND

The number of children requiring daily medical care is on the rise, with many being cared for at home. This situation places a significant burden on mothers, who often serve as the primary caregivers.

OBJECTIVE

This study aimed to clarify the factors that affect the quality of life of mothers with children who require home health care.

METHODS

A questionnaire study was conducted among mothers of children needing medical care at home, with 46 participants responding. The questionnaire included items regarding the child's condition, the mother's situation, and the World Health Organization Quality of Life-26scale.

RESULTS

Factors influencing the quality of life of mothers included whether the child attended daycare or school (β=.274; P=.04), the duration of home care (β=.305; P=.02), and the presence or absence of position changes (β=-.410; P=.003). The presence or absence of position changes had the most significant impact (adjusted R=.327).

CONCLUSIONS

The most significant factor affecting the quality of life of mothers of children requiring home medical care is the presence or absence of positional changes.

摘要

背景

需要日常医疗护理的儿童数量在不断增加,许多儿童在家中接受护理。这种情况给经常担任主要照料者的母亲带来了巨大负担。

目的

本研究旨在阐明影响需要家庭医疗护理的儿童的母亲生活质量的因素。

方法

对需要在家接受医疗护理的儿童的母亲进行了问卷调查,46名参与者进行了回应。问卷包括有关儿童状况、母亲情况以及世界卫生组织生活质量-26量表的项目。

结果

影响母亲生活质量的因素包括孩子是否参加日托或上学(β=0.274;P=0.04)、家庭护理的持续时间(β=0.305;P=0.02)以及是否有体位变化(β=-0.410;P=0.003)。是否有体位变化的影响最为显著(调整后的R=0.327)。

结论

影响需要家庭医疗护理的儿童的母亲生活质量的最显著因素是是否有体位变化。