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支持性护理在儿科肿瘤学中与癌症相关的症状:在医疗保健提供者中进行的定性研究。

Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers.

机构信息

National Research Center in Complementary and Alternative Medicine (NAFKAM), Faculty of Health Science, Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, N-9037, Norway.

Department of Epidemiology and Prevention, Division of Public Health Sciences, Wake Forest University School of Medicine, Winston-Salem, NC, 27157, USA.

出版信息

BMC Complement Med Ther. 2023 Apr 3;23(1):104. doi: 10.1186/s12906-023-03924-x.

Abstract

BACKGROUND

The aim of this study is to gain insight into the clinical experiences and perceptions that pediatric oncology experts, conventional healthcare providers, and complementary and alternative medicine (CAM) providers in Norway, Canada, Germany, the Netherlands, and the United States have with the use of supportive care, including CAM among children and adolescents with cancer.

METHODS

A qualitative study was conducted using semi-structured in-depth interviews (n = 22) with healthcare providers with clinical experience working with CAM and/or other supportive care among children and adolescents with cancer from five different countries. Participants were recruited through professional associations and personal networks. Systematic content analysis was used to delineate the main themes. The analysis resulted in three themes and six subthemes.

RESULTS

Most participants had over 10 years of professional practice. They mostly treated children and adolescents with leukemia who suffered from adverse effects of cancer treatment, such as nausea and poor appetite. Their priorities were to identify the parents' treatment goals and help the children with their daily complaints. Some modalities frequently used were acupuncture, massage, music, and play therapy. Parents received information about supplements and diets in line with their treatment philosophies. They received education from the providers to mitigate symptoms and improve the well-being of the child.

CONCLUSIONS

Clinical experiences of pediatric oncology experts, conventional health care providers, and CAM providers give an understanding of how supportive care modalities, including CAM, are perceived in the field and how they can be implemented as adaptational tools to manage adverse effects and to improve the quality of life of children diagnosed with cancer and the families.

摘要

背景

本研究旨在深入了解挪威、加拿大、德国、荷兰和美国的儿科肿瘤专家、常规医疗保健提供者以及补充和替代医学(CAM)提供者在使用包括儿童和青少年癌症患者 CAM 在内的支持性护理方面的临床经验和看法。

方法

采用半结构式深入访谈法对具有使用 CAM 和/或其他支持性护理治疗儿童和青少年癌症的临床经验的医疗保健提供者进行了定性研究(n=22)。参与者通过专业协会和个人网络招募。采用系统内容分析法来描绘主要主题。分析产生了三个主题和六个子主题。

结果

大多数参与者具有超过 10 年的专业实践经验。他们主要治疗患有癌症治疗副作用(如恶心和食欲不振)的白血病儿童和青少年。他们的首要任务是确定父母的治疗目标,并帮助孩子解决日常问题。经常使用的一些方法有针灸、按摩、音乐和游戏疗法。根据治疗理念,向家长提供补充剂和饮食方面的信息。提供者对他们进行教育,以减轻症状并提高孩子的幸福感。

结论

儿科肿瘤专家、常规医疗保健提供者和 CAM 提供者的临床经验使我们了解了支持性护理模式(包括 CAM)在该领域的认知,以及如何将其作为适应工具来管理不良反应,提高癌症诊断儿童及其家庭的生活质量。

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