Alteren Johanne, Johannessen Aud, Lyberg Anne Marit, Magnussen Inger-Lise
Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway.
Faculty of Health and Social Sciences, University of South-Eastern Norway, Horten, Norway.
J Multidiscip Healthc. 2023 Apr 1;16:851-861. doi: 10.2147/JMDH.S398570. eCollection 2023.
The World Health Organization [WHO] and governments worldwide envision the development of dementia-friendly societies that are based on a person-centered culture. A limited number of studies have described the features of dementia-friendly societies based on the viewpoints of people with dementia.
To synthesize qualitative empirical research that expands the knowledge of what people with dementia consider to be essential for daily living in a dementia-friendly society.
The authors searched phrases in the databases AgeLine, CINAHL, EMBASE, MedLine, PsycINFO, PubMed, ORIA, SveMed+, and Cochrane Library. Research articles that involved people with dementia and were conducted in Western countries, written in English, published in peer-reviewed academic journals using qualitative methods, and published within the past decade were included. The research included was critically and systematically appraised using the critical appraisal skills program checklist for qualitative research, and the findings were analyzed according to Graneheim and Lundman's method of qualitative content analysis.
Overall, 1122 records-561 from 2019 and 561 from 2021-were identified through the search, and nine studies were included in the final synthesis. The studies included were from the United Kingdom (five studies), Australia (three studies), and New Zealand (one study). Through the analysis process, the following main theme emerged: giving voice to people with dementia, which summarizes the essence of what people with dementia believe is essential for daily living in a dementia-friendly society. The main theme covered two themes: a sense of being valued and a sense of being safeguarded, each of which contained subthemes.
To meet the WHO's and the governments worldwide intention to develop dementia-friendly societies, further research should focus on the voices of people with dementia. By including those concerned, the political goals of a dementia-friendly society can be achieved.
世界卫生组织（WHO）和世界各国政府都期望建立以以人为本的文化为基础的关爱痴呆症患者的社会。少数研究从痴呆症患者的角度描述了关爱痴呆症患者的社会的特征。
综合定性实证研究，以拓展对痴呆症患者认为在关爱痴呆症患者的社会中日常生活必不可少的事物的认识。
作者在AgeLine、CINAHL、EMBASE、MedLine、PsycINFO、PubMed、ORIA、SveMed+和Cochrane图书馆等数据库中搜索相关短语。纳入的研究文章涉及痴呆症患者，在西方国家开展，用英文撰写，发表在同行评审学术期刊上，采用定性方法，且发表于过去十年内。使用定性研究的批判性评价技能计划清单对纳入的研究进行严格且系统的评价，并根据Graneheim和Lundman的定性内容分析方法对研究结果进行分析。
通过搜索，共识别出1122条记录，其中2019年561条，2021年561条，最终综合分析纳入9项研究。纳入的研究来自英国（5项研究）、澳大利亚（3项研究）和新西兰（1项研究）。通过分析过程，出现了以下主要主题：倾听痴呆症患者的声音，这概括了痴呆症患者认为在关爱痴呆症患者的社会中日常生活必不可少的事物的本质。主要主题涵盖两个主题：被重视感和被保护感，每个主题都包含子主题。
为实现世界卫生组织和世界各国政府建立关爱痴呆症患者的社会的目标，进一步的研究应关注痴呆症患者的声音。通过纳入相关人员，可以实现关爱痴呆症患者的社会的政治目标。
