Departments of Radiation Oncology.
Palliative Care.
Curr Opin Support Palliat Care. 2023 Jun 1;17(2):113-118. doi: 10.1097/SPC.0000000000000644. Epub 2023 Apr 6.
Patient-reported outcomes are one of the most valuable clinical outcome measures. In palliative care, however, they are often difficult to retrieve. Therefore, proxy-reported outcomes are sometimes used as a surrogate. As there have been concerns about the validity of these by-proxy reports, the authors reviewed the most recent literature for the most recent insights in using proxy-reported outcomes.
The authors found very little new research on patient versus proxy-reported outcomes in palliative care. The results of the studies the authors found seem to correlate with older evidence concluding that there are many factors influencing a discrepancy between patients' outcomes and how this is perceived by their proxies, such as the well-being paradox, caregiver burden, and the proxies' own mental well-being.
While proxies' opinions and knowledge of the patients' values are important factors to consider, proxy-reported outcomes should be used with caution and viewed as a complementary perspective rather than a true substitute for the individual patient's outcome.
患者报告的结果是最有价值的临床结果测量之一。然而，在姑息治疗中，这些结果往往难以获取。因此，代理报告的结果有时被用作替代。由于人们对这些代理报告的有效性存在担忧，作者查阅了最新的文献，以了解使用代理报告的最新结果。
作者发现姑息治疗中关于患者与代理报告结果的新研究很少。作者找到的研究结果似乎与早期的证据相吻合，即有许多因素会影响患者的结果与其代理人感知之间的差异，例如幸福悖论、照顾者负担和代理人自身的心理健康。
虽然代理人对患者价值观的意见和了解是需要考虑的重要因素，但应谨慎使用代理报告的结果，并将其视为对个体患者结果的补充视角，而不是真正的替代。
