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父母对自闭症谱系障碍(ASD)儿童营养重要性的认知和应对策略:一项定性研究。

Parental Perceptions on the Importance of Nutrients for Children with Autism Spectrum Disorder (ASD) and the Coping Strategies: A Qualitative Study.

机构信息

Dietetic Program, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.

Center of Rehabilitation and Special Needs Studies (iCaRehab), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.

出版信息

Nutrients. 2023 Mar 26;15(7):1608. doi: 10.3390/nu15071608.

Abstract

Autism Spectrum Disorder (ASD) is a developmental disorder that comes with co-occurring eating behavior such as limited food varieties, selective food intake, and repetitive eating patterns, contributing to significant challenges for their parents. Many parents find mealtimes difficult and develop anxiety or stress about their child's nutrition, health, and overall well-being. Hence, parents must equip themselves with the correct awareness and nutrition knowledge. An online open-ended semi-structured interview was conducted among fifteen parents from the community-rehabilitation program center to explore their understanding of nutrition's importance and the possible coping strategies when facing challenges. The interview sessions were recorded, followed by three researchers' coding processes. Data were then subjected to thematic analysis. The interview sessions suggested that the parents were aware of the autism trait eating behavior and had a general knowledge about nutrition. However, it was quite challenging when it came to preparation. Nevertheless, the parents are able to manage the challenges with unique kinds of coping strategies. In addition, a complete educational dietary intervention program including psychosocial aspects for parents is recommended for better effectiveness.

摘要

自闭症谱系障碍(ASD)是一种发育障碍,伴有共患的饮食行为,如食物种类有限、选择性食物摄入和重复的进食模式,这给他们的父母带来了重大挑战。许多父母觉得用餐时间很困难,并对孩子的营养、健康和整体健康感到焦虑或压力。因此,父母必须具备正确的意识和营养知识。在社区康复计划中心,对 15 名家长进行了在线开放式半结构式访谈,以探讨他们对营养重要性的理解以及在面临挑战时可能采取的应对策略。采访内容被记录下来,然后由三名研究人员进行编码处理。随后对数据进行主题分析。访谈表明,父母们意识到自闭症特质的饮食行为,并对营养有一般的了解。然而,在准备方面却颇具挑战性。尽管如此,父母们还是能够用独特的应对策略来应对这些挑战。此外,建议为父母提供包括心理社会方面的完整教育饮食干预计划,以提高效果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2612/10096955/c0bf1a680afc/nutrients-15-01608-g001.jpg

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