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本文引用的文献

1
Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study.克罗地亚、北马其顿和塞尔维亚发育障碍儿童父母和照料者的支持、挑战和需求认知:一项横断面研究。
BMC Pediatr. 2024 May 3;24(1):297. doi: 10.1186/s12887-024-04770-7.
2
Parental Perceptions on the Importance of Nutrients for Children with Autism Spectrum Disorder (ASD) and the Coping Strategies: A Qualitative Study.父母对自闭症谱系障碍(ASD)儿童营养重要性的认知和应对策略:一项定性研究。
Nutrients. 2023 Mar 26;15(7):1608. doi: 10.3390/nu15071608.
3
Food Selectivity in Children with Autism: Guidelines for Assessment and Clinical Interventions.自闭症儿童的食物选择性:评估和临床干预指南。
Int J Environ Res Public Health. 2023 Mar 14;20(6):5092. doi: 10.3390/ijerph20065092.
4
The after-school sedentary behavior status among children and adolescents with intellectual disabilities.智障儿童和青少年的课后久坐行为状况。
Front Psychiatry. 2022 Dec 1;13:1049180. doi: 10.3389/fpsyt.2022.1049180. eCollection 2022.
5
A review on children's oral texture perception and preferences in foods.儿童口腔质地感知与食物偏好的综述。
Crit Rev Food Sci Nutr. 2024;64(12):3861-3879. doi: 10.1080/10408398.2022.2136619. Epub 2022 Oct 27.
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Autism Res. 2022 Jun;15(6):1120-1129. doi: 10.1002/aur.2700. Epub 2022 Mar 17.
7
Paediatric chronic pain prevalence in low- and middle-income countries: A systematic review and meta-analysis.低收入和中等收入国家儿童慢性疼痛的患病率:一项系统评价和荟萃分析。
EClinicalMedicine. 2022 Feb 12;45:101296. doi: 10.1016/j.eclinm.2022.101296. eCollection 2022 Mar.
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A systematic review and meta-analysis of the benefits of a gluten-free diet and/or casein-free diet for children with autism spectrum disorder.自闭症谱系障碍儿童无麸质/无酪蛋白饮食的益处的系统评价和荟萃分析。
Nutr Rev. 2022 Apr 8;80(5):1237-1246. doi: 10.1093/nutrit/nuab073.
9
Eating and Lifestyle Habits in Youth With Down Syndrome Attending a Care Program: An Exploratory Lesson for Future Improvements.参与护理项目的唐氏综合征青少年的饮食和生活方式习惯:对未来改进的探索性研究
Front Nutr. 2021 Sep 8;8:641112. doi: 10.3389/fnut.2021.641112. eCollection 2021.
10
Nutrient adequacy, dietary patterns and diet quality among children with and without intellectual disabilities.智力残疾儿童与非智力残疾儿童的营养充足程度、饮食模式和饮食质量。
J Intellect Disabil Res. 2021 Oct;65(10):898-911. doi: 10.1111/jir.12871. Epub 2021 Aug 3.

克罗地亚、北马其顿和塞尔维亚发育障碍儿童的疼痛、饮食习惯及身体活动:一项横断面研究。

Pain, dietary habits and physical activity of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study.

作者信息

Međaković Jelena, Čivljak Antonia, Zorčec Tatjana, Vučić Vesna, Ristić-Medić Danijela, Veselinović Aleksandra, Čivljak Marta, Puljak Livia

机构信息

Centre for Evidence-Based Medicine and Health Care, Department of Nursing, Department of Medicine, Catholic University of Croatia, Zagreb, Croatia.

Institute of Emergency Medicine of Zagreb County, Velika Gorica, Croatia.

出版信息

BMC Pediatr. 2024 Dec 19;24(1):819. doi: 10.1186/s12887-024-05259-z.

DOI:10.1186/s12887-024-05259-z
PMID:39695491
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11657816/
Abstract

BACKGROUND

Multiple studies have shown that children with developmental disabilities (CDD) often live with unrecognized and untreated pain, consume inadequate diet and have inadequate levels of physical activity. This study aimed to analyze pain, dietary habits and physical activity of CDD in Croatia, North Macedonia and Serbia.

METHODS

A cross-sectional study was conducted in Croatia, North Macedonia and Serbia in March-April 2023 within the Erasmus+ SynergyEd project. The study included parents and caregivers of CDD. Data were collected via online survey.

RESULTS

We included 954 participants from Croatia (N=543; 57%), North Macedonia (N=205; 21%) and Serbia (N=206; 22%). Participants reported that 16% of children suffered from chronic pain related to their condition. The main findings of our study are that chronic pain is prevalent in CDD (16%). Almost half (48%) of participants avoid certain foods for their children. The majority of children (86%) were not on a special diet. Among those that were on a special diet, they were most commonly (60%) on a gluten-free diet. Most (54%) participants stated that their children used nutritional supplements. Less than half participants (45%) stated that the child is involved in some kind of physical activity. Only 17% of CDD engaged in physical activities 5 h or more per week.

CONCLUSION

Our findings indicate that chronic pain, inadequate dietary patterns and insufficient physical activity are common in CDD from Croatia, Macedonia and Serbia. Education of parents and caregivers can mitigate their use of interventions that have not been proven effective, such as for example the use of gluten-free diets in CDD.

摘要

背景

多项研究表明,发育障碍儿童(CDD)常常伴有未被识别和未得到治疗的疼痛,饮食摄入不足且身体活动水平欠佳。本研究旨在分析克罗地亚、北马其顿和塞尔维亚发育障碍儿童的疼痛、饮食习惯和身体活动情况。

方法

2023年3月至4月,在伊拉斯谟+协同教育项目框架下,于克罗地亚、北马其顿和塞尔维亚开展了一项横断面研究。该研究纳入了发育障碍儿童的家长和照料者。通过在线调查收集数据。

结果

我们纳入了来自克罗地亚(N = 543;57%)、北马其顿(N = 205;21%)和塞尔维亚(N = 206;22%)的954名参与者。参与者报告称,16%的儿童患有与其病情相关的慢性疼痛。我们研究的主要发现是,慢性疼痛在发育障碍儿童中很普遍(16%)。近一半(48%)的参与者会为孩子避开某些食物。大多数儿童(86%)未采用特殊饮食。在采用特殊饮食的儿童中,最常见的是无麸质饮食(60%)。大多数(54%)参与者表示他们的孩子使用营养补充剂。不到一半的参与者(45%)表示孩子参与了某种体育活动。只有17%的发育障碍儿童每周进行5小时或更长时间的体育活动。

结论

我们的研究结果表明,慢性疼痛、不良饮食模式和体育活动不足在克罗地亚、马其顿和塞尔维亚的发育障碍儿童中很常见。对家长和照料者进行教育可以减少他们使用未经证实有效的干预措施,例如在发育障碍儿童中使用无麸质饮食。