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应对针对自我忽视的弱势老年人开展研究的挑战——来自一个实地团队的记录

Meeting the challenges in conducting research in vulnerable older adults with self-neglect-notes from a field team.

作者信息

Pickens Sabrina, Burnett Jason, Trail Ross Mary Ellen, Jones Erick, Jefferson Felicia

机构信息

College of Nursing, Texas Woman's University, Denton, TX, United States.

McGovern Medical School, University of Texas Health Science Center at Houston, Houston, TX, United States.

出版信息

Front Med (Lausanne). 2023 Mar 29;10:1114895. doi: 10.3389/fmed.2023.1114895. eCollection 2023.

DOI:10.3389/fmed.2023.1114895
PMID:37064031
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10090372/
Abstract

Gaining a systematic understanding of possible ways to increase the quality and lifespan of older adults experiencing self-neglect has unique challenges. These challenges include identifying self-neglect in the community and navigating levels of cognitive, physical, and/or psychological difficulties in this population that impact recruitment, consent, and accurate data collection. Conducting quality research under some of the environmental self-neglect conditions such as squalor, animal and insect infestations and no utilities can also challenge planned study protocols and study validity. This manuscript presents details of these overarching challenges and some of the workable solutions noted and implemented by research field-team members who have enrolled over 300 adults experiencing self-neglect for various studies. Usual research methodology must overcome these barriers to work to create consciousness about the self-neglect population. The classic series of cases is still a good alternative when describing self-neglect. Considerations for conducting future self-neglect research are presented.

摘要

系统了解提高自我忽视老年人生活质量和寿命的可能方法面临独特挑战。这些挑战包括在社区中识别自我忽视情况,以及应对该人群中影响招募、同意和准确数据收集的认知、身体和/或心理困难程度。在一些环境自我忽视条件下开展高质量研究,如肮脏、动物和昆虫滋生以及没有水电供应等,也会对计划好的研究方案和研究有效性构成挑战。本手稿详细介绍了这些总体挑战,以及参与过300多名自我忽视成年人各类研究的研究现场团队成员所指出并实施的一些可行解决方案。常规研究方法必须克服这些障碍,以努力提高对自我忽视人群的认识。在描述自我忽视时,经典系列病例仍是一个不错的选择。本文还提出了未来开展自我忽视研究时的注意事项。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b383/10090372/071fac504121/fmed-10-1114895-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b383/10090372/071fac504121/fmed-10-1114895-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b383/10090372/071fac504121/fmed-10-1114895-g0001.jpg

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本文引用的文献

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Development of a Conceptual Framework for Severe Self-Neglect (SN) by Modifying the CREST Model for Self-Neglect.通过修改自我忽视的CREST模型来构建严重自我忽视(SN)的概念框架。
Front Med (Lausanne). 2021 May 17;8:654627. doi: 10.3389/fmed.2021.654627. eCollection 2021.
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