Suppr超能文献

帕金森病中的种族和民族差异:行动呼吁

Racial and Ethnic Disparities in Parkinson Disease: A Call to Action.

作者信息

Aamodt Whitley W, Willis Allison W, Dahodwala Nabila

机构信息

Department of Neurology (WWA, AWW, ND); and Translational Center of Excellence for Neuroepidemiology and Neurology Outcomes Research (WWA, AWW), University of Pennsylvania, Philadelphia, PA.

出版信息

Neurol Clin Pract. 2023 Apr;13(2):e200138. doi: 10.1212/CPJ.0000000000200138. Epub 2023 Mar 16.

Abstract

Health disparities are pervasive in the United States. In the field of Parkinson disease (PD), profound racial and ethnic disparities exist in diagnosis, treatment, and research participation, leading to differential health outcomes and lack of generalizable research data. Racial and ethnic disparities not only limit our understanding of this complex heterogeneous disorder but also hamper our ability to provide new evidence-based care for America's most vulnerable populations. In this report, we summarize findings from our comprehensive white paper for the Michael J. Fox Foundation that reviews the current state of knowledge on racial and ethnic disparities in PD care in the following areas: epidemiology, etiology, phenotype and diagnosis, treatment, and research. We also identify knowledge gaps and necessary policy changes to ensure equitable, high-value care for all persons with PD. These strategies are designed to help identify and reduce health disparities among persons with PD and may serve as a model for other neurologic diseases.

摘要

健康差异在美国普遍存在。在帕金森病(PD)领域,诊断、治疗和研究参与方面存在严重的种族和民族差异,导致不同的健康结果以及缺乏可推广的研究数据。种族和民族差异不仅限制了我们对这种复杂异质性疾病的理解,还阻碍了我们为美国最脆弱人群提供新的循证护理的能力。在本报告中,我们总结了为迈克尔·J·福克斯基金会撰写的综合白皮书的研究结果,该白皮书回顾了帕金森病护理中种族和民族差异在以下领域的当前知识状况:流行病学、病因学、表型与诊断、治疗和研究。我们还确定了知识差距和必要的政策变化,以确保为所有帕金森病患者提供公平、高价值的护理。这些策略旨在帮助识别和减少帕金森病患者之间的健康差异,并可为其他神经系统疾病提供范例。

相似文献

1
Racial and Ethnic Disparities in Parkinson Disease: A Call to Action.
Neurol Clin Pract. 2023 Apr;13(2):e200138. doi: 10.1212/CPJ.0000000000200138. Epub 2023 Mar 16.
3
4
Racial/Ethnic Differences in Psychiatric and Medical Diagnoses Among Autistic Adults.
Autism Adulthood. 2022 Dec 1;4(4):290-305. doi: 10.1089/aut.2021.0083. Epub 2022 Dec 13.
7
9
Racial and Ethnic Disparities in Geographic Access to Autism Resources Across the US.
JAMA Netw Open. 2023 Jan 3;6(1):e2251182. doi: 10.1001/jamanetworkopen.2022.51182.
10

引用本文的文献

1
A model to address healthcare gaps and poor research participation in Hispanic patients with Parkinson's disease.
Front Aging Neurosci. 2025 Aug 12;17:1610448. doi: 10.3389/fnagi.2025.1610448. eCollection 2025.
3
The future of Parkinson's care: a need to expand access.
Front Neurol. 2025 Jun 19;16:1622283. doi: 10.3389/fneur.2025.1622283. eCollection 2025.
5
7
"Ups and Downs, Joys and Sorrows" - Assessment and Clinical Relevance of Patient Priorities in an Interdisciplinary Parkinson's Disease Clinic.
J Patient Cent Res Rev. 2024 Oct 15;11(3):186-196. doi: 10.17294/2330-0698.2078. eCollection 2024 Fall.
8
Patient perceptions of genetic counselors' role and emotional support needs in adults with Parkinson's disease.
J Genet Couns. 2025 Apr;34(2):e1971. doi: 10.1002/jgc4.1971. Epub 2024 Sep 13.
9
Genetic and phenotypic characterization of Parkinson's disease at the clinic-wide level.
NPJ Parkinsons Dis. 2024 May 3;10(1):97. doi: 10.1038/s41531-024-00690-6.
10
Explainable machine learning for predicting conversion to neurological disease: Results from 52,939 medical records.
Digit Health. 2024 Apr 28;10:20552076241249286. doi: 10.1177/20552076241249286. eCollection 2024 Jan-Dec.

本文引用的文献

1
Medicare Beneficiaries In Disadvantaged Neighborhoods Increased Telemedicine Use During The COVID-19 Pandemic.
Health Aff (Millwood). 2022 May;41(5):635-642. doi: 10.1377/hlthaff.2021.01706.
2
Comparison of motor, non-motor, and quality of life phenotype in Black and White patients with Parkinson's disease.
Parkinsonism Relat Disord. 2022 Mar;96:18-21. doi: 10.1016/j.parkreldis.2022.01.018. Epub 2022 Jan 22.
4
Lessons From George Floyd: Racial Inequalities in the Treatment of Parkinson's Disease.
Mov Disord. 2021 Mar;36(3):599-603. doi: 10.1002/mds.28388. Epub 2020 Nov 17.
6
Parkinson's Disease in African Americans: A Review of the Current Literature.
J Parkinsons Dis. 2020;10(3):831-841. doi: 10.3233/JPD-191823.
7
Prevalence and Correlates of Anti-Parkinson Drug Use in a Nationally Representative Sample.
Mov Disord Clin Pract. 2016 Aug 22;4(3):335-341. doi: 10.1002/mdc3.12422. eCollection 2017 May-Jun.
8
Epidemiology of Parkinson's Disease-East Versus West.
Mov Disord Clin Pract. 2017 Dec 22;5(1):14-28. doi: 10.1002/mdc3.12568. eCollection 2018 Jan-Feb.
9
Patterns of Dementia Treatment and Frank Prescribing Errors in Older Adults With Parkinson Disease.
JAMA Neurol. 2019 Jan 1;76(1):41-49. doi: 10.1001/jamaneurol.2018.2820.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验