Aamodt Whitley W, Willis Allison W, Dahodwala Nabila
Department of Neurology (WWA, AWW, ND); and Translational Center of Excellence for Neuroepidemiology and Neurology Outcomes Research (WWA, AWW), University of Pennsylvania, Philadelphia, PA.
Neurol Clin Pract. 2023 Apr;13(2):e200138. doi: 10.1212/CPJ.0000000000200138. Epub 2023 Mar 16.
Health disparities are pervasive in the United States. In the field of Parkinson disease (PD), profound racial and ethnic disparities exist in diagnosis, treatment, and research participation, leading to differential health outcomes and lack of generalizable research data. Racial and ethnic disparities not only limit our understanding of this complex heterogeneous disorder but also hamper our ability to provide new evidence-based care for America's most vulnerable populations. In this report, we summarize findings from our comprehensive white paper for the Michael J. Fox Foundation that reviews the current state of knowledge on racial and ethnic disparities in PD care in the following areas: epidemiology, etiology, phenotype and diagnosis, treatment, and research. We also identify knowledge gaps and necessary policy changes to ensure equitable, high-value care for all persons with PD. These strategies are designed to help identify and reduce health disparities among persons with PD and may serve as a model for other neurologic diseases.
健康差异在美国普遍存在。在帕金森病(PD)领域,诊断、治疗和研究参与方面存在严重的种族和民族差异,导致不同的健康结果以及缺乏可推广的研究数据。种族和民族差异不仅限制了我们对这种复杂异质性疾病的理解,还阻碍了我们为美国最脆弱人群提供新的循证护理的能力。在本报告中,我们总结了为迈克尔·J·福克斯基金会撰写的综合白皮书的研究结果,该白皮书回顾了帕金森病护理中种族和民族差异在以下领域的当前知识状况:流行病学、病因学、表型与诊断、治疗和研究。我们还确定了知识差距和必要的政策变化,以确保为所有帕金森病患者提供公平、高价值的护理。这些策略旨在帮助识别和减少帕金森病患者之间的健康差异,并可为其他神经系统疾病提供范例。