在英国，主要来自亚洲背景的帕金森病患者获得医疗保健服务的障碍。
The barriers to receiving health care for people with Parkinson's from predominantly Asian backgrounds in the UK.
作者信息
Ramadhan Mouhammed, Stott Joshua, Schrag Anette
机构信息
Department of Clinical and Movement Neurosciences, UCL Queen Square Institute of Neurology, University College London, London, UK.
Division of Psychology and Language Sciences, University College London, London, UK.
出版信息
NPJ Parkinsons Dis. 2025 May 20;11(1):131. doi: 10.1038/s41531-025-00946-9.
Despite universal access to healthcare to eligible people of all ethnic backgrounds in the NHS, disparity in healthcare provision exists. Parkinson's disease (PD) is a chronic, progressive disorder with an insidious onset and increasing healthcare needs over time. However, there is little information on the experience of healthcare and barriers to access in people from minority ethnic (ME) backgrounds in the UK. Interviews were conducted with 21 People with Parkinson's (PwP) (38% female, mean age 54 (SD 10.67 years) from ME groups. Results were analysed using Braun and Clarke's thematic analysis. Four main themes were extracted: Awareness and Acceptance of Symptoms in the ME Community; Socio-cultural Expectations and Impacts; Access to Information on Parkinson's and Services; and Experiences of Healthcare. ME-PwP experience challenges in accessing healthcare, even in a universal healthcare system. Recognising these complex barriers may improve access and quality of life.
尽管英国国民保健服务体系（NHS）为所有符合条件的不同种族背景的人提供了普遍的医疗保健服务，但医疗保健提供方面仍存在差异。帕金森病（PD）是一种慢性、进行性疾病，起病隐匿，随着时间的推移医疗需求不断增加。然而，关于英国少数族裔（ME）背景人群的医疗保健经历和就医障碍的信息却很少。对21名帕金森病患者（PwP）（38%为女性，平均年龄54岁（标准差10.67岁））进行了访谈，这些患者来自少数族裔群体。采用布劳恩和克拉克的主题分析法对结果进行了分析。提取了四个主要主题：少数族裔社区对症状的认识和接受；社会文化期望及影响；获取帕金森病信息和服务的情况；以及医疗保健经历。即使在普遍的医疗保健系统中，少数族裔帕金森病患者在获得医疗保健方面也面临挑战。认识到这些复杂的障碍可能会改善就医机会和生活质量。
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