KITE Research Institute, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario, Canada.
Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
Gerontologist. 2024 Feb 1;64(2). doi: 10.1093/geront/gnad045.
Relational caring has the capacity to reduce stigma associated with dementia by shifting the focus from dysfunction and behavior management, to attending to the interdependencies and reciprocities that underpin caring relationships, and making explicit the centrality of relationships to quality care, growth, and quality of life. Education, particularly arts-based approaches, has been identified as a key strategy to decrease stigma. Yet rarely are the arts utilized in educational initiatives, and particularly so in community care settings. With an interest in redressing this, our team evaluated the impact of a Canadian filmed research-based drama-Cracked: new light on dementia-about stigma associated with people living with dementia and their families.
We conducted interviews with family carers of people living with dementia and formal care providers affiliated with community-based dementia care, and also the general public at 3 and 8 months postscreening.
Our analysis of participants' perceptions/experiences illustrates the effectiveness of Cracked in reducing stigma by demonstrating changes in the understanding of dementia and changes in practice. Our analysis also includes attention to how the film, as a form of cultural production, deepened engagement and facilitated transformation.
Our evaluation of Cracked demonstrates that it is an effective strategy for decreasing the stigma associated with dementia by promoting relational caring. It also importantly contributes to the theoretical literature that supports film-based approaches to stigma reduction.
关系关怀有能力通过将注意力从功能障碍和行为管理转移到关注支撑关怀关系的相互依存和互惠关系，以及明确关系对优质护理、成长和生活质量的核心作用，从而减少与痴呆症相关的耻辱感。教育，特别是基于艺术的方法，已被确定为减少耻辱感的关键策略。然而，艺术很少被用于教育计划中，尤其是在社区护理环境中。我们团队对纠正这一问题很感兴趣，评估了一部加拿大拍摄的基于研究的戏剧《Cracked：新视角看待痴呆症》对与痴呆症患者及其家属相关的耻辱感的影响。
我们对痴呆症患者的家庭照顾者和与社区为基础的痴呆症护理相关的正式护理提供者进行了访谈，并在筛查后 3 个月和 8 个月对公众进行了访谈。
我们对参与者的看法/经验的分析说明了 Cracked 通过展示对痴呆症的理解的变化和实践的变化来减少耻辱感的有效性。我们的分析还包括关注电影作为一种文化产品如何深化参与并促进变革。
我们对 Cracked 的评估表明，它是通过促进关系关怀来减少与痴呆症相关的耻辱感的有效策略。它还重要地为支持基于电影的方法减少耻辱感的理论文献做出了贡献。
